Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hi everyone.. Its been 4 days since I had a lp shunt put in..Im going pretty good..Looking for some tips on "living with the shunt"
Thanks
debi
Thanks
debi
I didn't even know you were getting shunt...I am glad to hear you are feeling good..I dont have any advise about the shunt, just some well wishes coming your way..I hope you continue to improve..Paula
Advice I don't have since my VP shunt surgery isn't until next week. But I am so happy that you are doing good and hopefully getting plenty of rest. Good luck!!!! :~)
Sherry
Glad that the surgery part is done for you!
My advice to living with a shunt- do not believe that it will fix everything. Yes, you will have wonderful days, and hopefully many of them- back to back.
However, you will still have some bad days, days with headaches. Just roll with it and know that it is the horrid IH reaching out and announcing that it is still present!
Listen to your doc and take all meds that they tell you. I know when my shunt was placed and I felt better, I stopped the topamax, NOT a GOOD IDEA! :)
I hope all goes well and life improves drastically for you!
I once told MM3 that if I never had a headache then I would tell you that I have a headache but now that I have IIH, and a shunt, I don't really have a headache.
What I mean by this is that I still have small headaches from time to time but they are NOTHING next to the HAs I had before shunt. So while they are still a HA it is really not a HA on the scale of what we as IIH patients know a HA to be.
I know this may be confusing and it is, but bottom line is that the shunt is trying to do something that our body is no longer capable of doing for whatever reason but it is doing it in a vacuum. It is a mechanical device that has no ability to communicate with our body about how much fluid to make or absorb. It simply lets out an amount based on how much pressure our head is feeling. So if our production or absorbtion varies from day to day, the shunt is oblivious to this and acts the same way regardless. The end result is we may still build pressure some days or bleed off too much on others but hopefully, on the average we will be better off than before the shunt.
Hope this makes some sense.
TJ
12 days now since the surgery. OMG..I am so BORED ! I'm not having any complications and I would say that the shunt is working pretty good. I don't have the wooshing sound anymore. I believe my eye sight has improved and I am praying that Neuro Opt will confirm it on Monday.
I have a few little issues that I am sure will disappear in time.
Thank you all for your prayers and support.
Debi