Prolactinoma Support Group

A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...

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gmdm2009 10/31/2009

Today Gina didn't even want to get out of bed,
she's extremely tired, nausaus ,bad headache and irritible, feel bad for her she was suppose to go to a halloween party, her weekends are beginning to suck.

deleted_user 10/31/2009

Probably too much Cabergoline. Maybe we can get the manufacturer to come out with a "Cabergoline - Lite".

Think it would sell???

deleted_user 10/31/2009

so sorry to hear that. sending good thoughts your way. can they reduce the dosage or does the doctor think the side effects will go away with time? sounds awful... and so unfair :(

gmdm2009 11/01/2009

Cabergoline lite sounds good,she's taking 1/2 of 0.5 mg twice a week,don't know if they can
reduce the dosage, going back to the endo
on Nov. 9th, going to talk to her then She'll
have blood drawn this tuesday, hopefully when we see the doctor her levels will have gone down.

deleted_user 11/05/2009

I am on .5 mg of Cabergoline twice a week (one whole pill twice a week). the first couple of weeks were HORRIBLE. now that it's been almost two months things have been getting better. I don't get as much headaches and that "hung over" feeling as much. i'm still very tired most days, all i want to do is sleep! Hang in there... he body will start getting used to the medication. Good luck. Hope she starts to feel better soon!!!

deleted_user 11/10/2009

Hi,

I know this not much help...but I have been on 0.25mg cabergoline twice a week for 3 months..previously was taking 0.25mg once a week..that did nothing to the prolactin levels.
The levels are now comming down, but I still have side effects especially headaches and tiredness. BUT they are getting less, and my system seems to be slowly adjusting, remember all the other hormones will have to find their balance when the prolactin adjusts as well..and this is a slow process..I have given myself two years to feel horrible and accept it....Good luck!

lindilou 11/15/2009

Hi I've been on Cabergoline for 10 months firstly on the small dose of half a tablet twice a week and now Im on (for the past 3 months) one tablet twice a week, I was ok on the half a tablet, but have felt pretty awful on the bigger dose, I'm hoping it gets better, as long as it is doing the job I shall persevere, I have another MRI August 2010, and hope full my Tumor 2 cms with have reduced.
Best wishes, Linda

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