Hi, sleeping problems are caused by cab and not the tumor. Try take the pills in the morning instead of evening. If it doesn't help you're probably gonna need sleeping pills while on cab.

Thanks Liam
I can always depend on u.
I am taken sleeping pills at night. This is more like anxious feeling. During the early evening. My mind just thinks about this feeling I feel. It's overwhelming . I don't want to go on antidepression medince. I hoping this will pass. I have been on cab for 8 weeks. My doctor change me from 2 pills to one. I panic about everything .. Does the mind and body ever gets use to this medicine.
Sigh:(

Hi, glad I can help. It usually comes in periods in the beginning, some effects are more intense during some time and then they decrease, it is difficult to say how long they are going to last and which of the possible effects you'll experience since it's individual but anxiety and sleeping loss are common side effects of both cab and bromo so it's not unusual that you are experiencing them. You will realize that effects like these will become a part of your life, it sucks but it's the way it is. Try to stay off antidepressants as long as you can, they usually have more intense side effects than agonists but if it stays on your probably gonna have to consider it. Often people take supplement meds to cope with agonists; antidepressants, migrain meds, heart meds and so on. In my case, I have periods where I can't eat, periods when I'm completely ill and the like, sometimes it stays for long; a couple of months and sometimes it lasts for a week. Cab has a half-life that's pretty long, 4-7 days from taking the pill. Even when not on the pill, it's in the blood so it can come back even if not taking it.

#1 Sounds like you might do better on Bromocriptine instead of Cabergoline.

#2 Try Lorazepam for 4pm, if you wanted to stay herbal I guess the equivalent would be Valerian root.

Thanks for Sharing & Good Luck!

can I ask why 4pm you are restless ..sorry just me looking deeper

I get just don't know. But it's always early evening hours.
Last night I felt so sick. My mind just wouldn't shut off. I always thinking about what's wrong with me. This all started when I started cab. Medicine. The doctor just cut in half because my prolactin went down from 1596 to 14 on 6 weeks. I told him that the Medicine is like I having having a breakdown mentally. Its everyday. I not happy. I have problems going home because this is where my sickness started . This medicine just makes me feel worked up.
Thanks for listening
Linda

..I dont take cab athough want to mix it in with my other drug but at moment one drug is enough with side effects.but for myself I have to keep busy its as if I dont want to think about having a pit tumor it gets overwhelming if I think to much..we sure deal with alot not straight forward and alot of support is needed..I find Im much better in the morning Im an early bird but I feel better than in evening..I find im like a grumpy teddy ..also I feel alot of pressure because I dont tell people..normals I call them LOL they dont totally understand..I have a rash on my neck and have had more sympathy..shakes head..I think maybe when the door is closed when you get home its a combination of alot of things affecting you and biggest hugs coming..

I am conventional medicine but Im alternative as well..Im looking into trying to cope without taking to many medications..I do take a tonic which helps its one to help with just general wellbeing because my iron levels were low so trying to help more with tireness as one symptom tireness and Im trying to not pick up bugs to knock me further..lavender I find calming although I have someone who sneezes if I use it LOL typical..but I wash covers in a lavender smell or rose helps with sleep..

Linday, Your symptoms sound exactly like me. I just want to cry reading your post. I also have that similar reaction to cabergoline. I've got 6mm microprolactinoma, found 10 years ago. I've tried cabergoline maybe 4 or 5 different times. Every time I go into deep depression, SEVERE anxiety. Then the doctors put me on lexapro for antidepressant, trazadone for sleeping. Then my anxiety just got worse, so they put me on Klonapin. That made me sleepy. zapped all my energy. Wasn't strong enough, they put me on ativan. Wasn't working. Then I had a serious panic attack on the 4th of July. Ended up in the hospital because the paranoia and hallucinations were so bad. They though I was on drugs or drunk! I said, I've got this tumor, I'm on all these meds, but I dont drink or smoke or do drugs!! I'm as straight edge as they come ! I dont even drink coffee or soda or anything with caffeine.I finally took myself off all the meds, especially the cabergolne, because not only does it make my life a living hell, it doesn't work. My prolactin went up.... not down. I'm so frustrated. =(

*** Linda! sorry! typo =)

So, you stopped taken cab. do you feel better?
My endo. said that my depression and anxiety is not from the medicine. He told me to stop for a couple of weeks to see. I have an appointment to see another endo on Thursday. Right now I am going thru bad hot flashes and chills. but I not sure if its from paxil . I just started taken but I am looking to maybe stop...I just dont know. I dont want to play with the prolactin because I was feeling sick before the medicince. but I do have to say> I feel worst now taken medicine. Just too much xanax for anixiety and now paxil... and cab. and also hormone medicines now. No wondering I feel crazy.

its amazing. its been 3 weeks since i've taken the cabergoline and i feel way better. no more depression, anxiety is way better, and feeling healthier in general. i stopped taking the lexapro and anti anxiety meds too.. didnt feel like i needed them anymore. im amazed the endo didnt admit the cab could make you anxious and depressed. they are definitely side effects of the meds, even my endo told me that. when you have too much dopamine going into your brain at once, you can actually feel more anxious than anything else.

So. Now that you are off the medicine how we you control your prolactin and tumor? Was your prolactin high? I cut down my medicine to a half a week.. Still feel the same.
Linda

Linda- my prolactin is still high, around 180, but when the dr. looked at the mri, she couldnt find a tumor. it looks like i barely even have one?? if at all? its very confusing! i know that stress plays a huge role in elevated prolactin, so I'm going to work on stress reduction, exercising more, eating better, and also going to see my naturopath. he had put me on the amino acid L-Tyrosine and vitamin B6 previously (the precursor to dopamine) and it brought my levels of prolactin down quite a bit, 25% in a month. but then i went back to school and got stressed and my levels came back up. stress for me is a huge issue and it makes sense that is would be.... stress creates prolactin, prolactin supresses dopamine, low dopamine and high prolactin cause stress and anxiety, and the cycle repeats. Gotta nip this in the bud, get my prolactin levels down, and then see what happens! but, apparantly i have no tumor, so its just a matter of rebalancing my hormones. i am pretty confused at this point, but just gonna try to deal with it the best i can.

I know what you mean about stress. I have my tumor for over 20 years didn't take anything because the medicine kills me. I went onexapro three years ago due to my husband having a break down with his heath. We have our own business so everything went on to me. Lexapro made me angry and gain weight. I stopped on febraury . Our business was getting hit with the way the world is in and we started to lose some big accounts. I went down with stress and worry. March I started to feel funny. Eyes blurry, headaches, face felt numb. I thought it was a stroke but everything was checked and all that came up was prolactin at 1596. So I went on cab 2 pills a week. It went down 14 in 6 weeks of hell . So now I am taken 1 pill a week. Feel the same . Crazy!!! This is more stress than losing accounts. So now my gyno put me on hormone meds... Did not take yet. My family doc put ms on paxil.. Was so out of my mind one night so I took it for two days. I stopped .. No one believe me .. But thank god for this group. And you. I sorry I don't know you first name.
So I hear that b6 and l-lysine (spell wrong)
Helps prolactin. How much to you take each day . I really would love to go that route.
I also heard that valerian root is like Xanax .
Please keep in touch with me. I really feel we have a lot in common.
Linda