HI, i have a micro adenoma and an underactive thyroid (not enough to treat yet) but the research and my doc said it is very common for those with prolactinomas to eventually go hypo!

I have a 5MM prolactinoma. After getting my prolactin levels normal, I still had a ton of symptoms... which were very similiar to hypothyroid.

My thyroid levels were low but still in normal range and they kept going down (I had several years of blood work showing a downward trend). I found a DR that would try hypothyroid treatment to treat the symptoms. Seems to be mixed schools. Traditional endos won't treat (and don't recommend treating) until levels go below normal. Same with my primary care. He thought it was foolish and would rather prescribe very strong antidepressants!!!

I've been doing thyoid treatment for 10 months. At first I started off with Armour thyroid (and tried different doses) and my levels really weren't coming up. I felt a bit better, but not great. A month ago they added levothyroxineI (more traditional treatment) and I'm starting to feel feel human again!!! Even more of the symptoms have gotten better. I don't feel 100% back to normal, but way better. My next blood work is early December so it will be interesting to see where the thyroid levels are.

I just want my life back!! It's really difficult trying to figure this out. No dedication on the DR's part!! Just me pushing, and some days I feel foolish. At least I'm feeling better... I hope it lasts!

I have not had problems with my thyroid but I know my doctor checks it at least every year.

I also have problems with my Thyroid. Low but levels in the normal range. Tsh 3,5-5,5 and so on.
I should fight for thyroid medication. I'm now on Euthrox, and my Thyroid levels are en the normal area, with TSH below 0,5.
I'm still not feeling well, and my doctor prescribed antidepressants -but I'm now trying to quit them because of the side effects.
I have also tried Liothyroine T3, but I couldn't cope with the meds, felt really strange in my head right after having taken it...
Gitte

Strattera has been a God-send for the depression and fatigue that go with our condition.

my endo is concerned that my thyroid is about to have problems of some kind but the tests are within normal levels she just keeps checking and says we will catch it early-i have no idea what my thyroid level is.

Hi Everyone,
Thank you all for your replies. What I can't understand is I lost weight, went to the doc's, gave me blood test, and revealed I had a under-active thyroid, now I thought you put weight on with an under-active thyroid, do you thing the diagnosis is correct, I have no faith in my doctor at all.
Linda

does anyone have problems describing how they feel, when I say I don't feel well, my husband will ask, how do I feel, and it is so hard to explain, when you feel so awful tired and and like you are on another planet, is it the drugs that make you feel that way or the tumor??

I now exactly what you mean :o( I'm feeling awful, and also has a microprolactinoma and an underactive thyroid...
I'm gaining weight instead of loosing, so I can't understand that you are loosing weight? Do you have nausea and lack of appetite? I often has, especially in the mornings...:o(
Gitte

I have a hot flash, everyday. That hot flash may last two hours or it may last 13 hours. Everytime, my eyes get glazed over...my face, scalp, and ears turn red and I just burn up.

The hot flash wears me out. The only time I may have a "silent' hotflash is if I've rested all day long and done nothing in the way of exertion.

Regardless of what time the hotflash starts, I get sleepy beyond belief and sometimes nod off at my desk at work. I usually pick up from there some. I have no problem dropping into bed exhausted.

My wife looks at me and asks me if I've been crying...that's how bad I look and how bad I feel every day of my life. I get about 6 hours of useful energy each day...beyond that...I don't fight it anymore.

Here in England the medical professionals do not give seem to give me much information on my condition, you all seem quite knowledgeable on what is going on, I was just told my Prolactin was very high 35000, and I had a Macro Prolactinoma, they did not tell me the size of the tumor or any information on my Thyroid levels, just that I was under-active and put onto Levothyroxin 0.50 once and day, and Cabergoline 1 twice a week., I have to go to see the Endo tomorrow, I shall be asking a few questions, after reading some of the posts from you guys.
Thanks for your help.
Best wishes Linda

Hi Gitte,
No I have a very good appetite, never nauseous, I feel I have to eat to keep my weight up, saying that I enjoy healthy foods, not sweet, fatty type of food. I like a drink too, although on the Cabergoline I find after one or two, I've had enough.
Best wishes Linda

i also have lost weight in the last in the last 6 months thats how i knew something was really off,i have always struggled with my weight have done every diet possible and still was never as thin as i am now.Its strange i dont feel like myself everyone says i look great as in weight wise but i have aged years in my face because i feel so horrific most days.

i saw the Endo, on Wednesday, I had more bloods taken, he measured my Macro Prolacinoma off the scan it measured 2 cm, he was not too concerned as it had not grown into my optic space, the next MRI scan is not until next July, seems a long way off, some days I feel so awful, and other days I have so much energy I think my head will burst because I can't do thing quick enough, does anyone else have these symptoms?
Linda

oh i know this feeling.One day i am that unwell can barley do anything my mind is a mess the next day i have so much energy not long lasting but i cant move or think quick enough it is like a high but it only lasts a couple hours.Funny thing is i cant explain it too anybody it leaves me speechless, but with a huge to do list...Also i have been having these at night 3am cleaning not being able to sleep this has just started before i could have slept for days at a time only to get up for toilet breaks..This is strange no wonder i have trouble explaining it i cant understand it myself.