When they killed my tumor it caused a empty Sella and damaged my growth hormone. Not really great during the changes about 4 months but now that I am on medication for the GHD I feel much better then I did before.

Well, weight gain seems pretty prevalent and I have high blood pressure though not too bad. Hormones can affect so many different areas and blood pressure being one.

Hi Guys,

I am not medically qualified to offer advice however, many thousands of research by me would suggest that there are several related conditions to prolactinoma including the following:
Lupus
Auto-immune disorders
Rhumatoid Arthritis
Addisons
Pulmonary Embolism
Friedricks Attaxia
MS
ME
Low Bone Density (Brittle Bones)
Hypotension
Hypertension.

That does not mean that you will necessarily develop any of the above.

A recent survey I did on a pituitary Forum showed a huge link between auto-immune disorders, addison's (Type 2) and prolactinomas.

For further information, I would highly recommend you go to www.pituitarychat.com

Regards,

Paul

Thanks, everyone, for your replies, especially Paul--extensive as usual. I think a lot depends on how well you take care of yourself through diet and exercise, and, luckily, I seem to be okay in those areas. I don't know much about autoimmune disorders or type 2 Addison's, so I'll have to do a bit of research. Thanks again.

Hi Juanitoc,

When you said "I think a lot depends on how well you take care of yourself ", I could not resist posting a reply. I could not agree more with you. Another thing that helps is your mental attitude. It is my strong belief that your mental attitude counts for more than all other medications and treatments put together.

There was a time when I mentally just gave up the fight. Within weeks, I was in a wheel chair with no interest in life at all. I was basically in God's waiting room. I lost four stone (mostly muscle mass), didn't eat for days or weeks at a time and had no interest in life. My health deteriorated unbelievably. I found myself in a hospice. When I went into the hospice, I lacked the energy needed open up my laptop. I was unable to walk. From somewhere, I rediscovered the will to live. It took five months to get myself back to where I was when I gave up. It took less than five weeks to degenerate to the point that I looked and felt like a corpse.
You cannot measure PMA in milligrams nor see it through a microscope but it has saved my life on more than one occasion.

It is a shame that having a prolactinoma robs you of a lot of your ability to fight but it doesn't completely remove it. Only you can do that.

I hope this helps,

Paul

Yes, mental attitude is also very important. For me, exercising has been very helpful in maintaining a positive outlook. I find when I'm feeling depressed or have low energy if I go to the gym and run on the treadmill for an hour or so, I immediately feel much better. I also think if you have spirituality that helps. Counting your blessings and trying to focus on what's good in your life rather than what's not is also quite beneficial. I have a prolactinoma, but I'm not handicapped. I can still hold down a job and have a social life. After the initial shock of my diagnosis wore off, it really just become more of a nuisance having to take meds, endure side effects, and get blood work and MRIs.

From what I understand of your condition, Paul, it's pretty serious, so I can certainly see why you'd feel down. I hope things have improved for you.

Thanks juanitoc,

I have a prolactinoma, the prolactinoma doesn't have me.

That should address your posting quite nicely.

Regards,

Paul