Prolactinoma Support Group
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...

abbybaby69
I thought I'd share my experience on the chance that maybe it will help others in some way. After my last visit with my endocrinologist, I've decided to get a new endo and very possibly a new neuro doc if required. Here's my journey thus far:
In October I had an MRI ordered by my PCP to confirm pituitary tumor. She then referred me to a neurologist. The neurologist confirmed the tumor & then referred me to an endo plus ordered blood work. By December, I was finally able to meet with my endo but he wouldn't prescribe any medicine until he had me complete his own blood work order. Both labs consisted of 5 tubes but I don't know what the difference were.
Finally, in January I'm able to begin the medicine (bromocriptine) with a follow up appointment with my endo in March (of which again included more blood work).
By March, I've been on the medicine for two months. I made a solid list of issues/possible side effects and questions that I wanted to ask my endo. During the appointment, I proceeded to list out some issues. While they're not severe, they were items I wanted to discuss. He immediately cut me off and said don't blame everything on the medicine. I then proceeded to discuss some of my questions that I had that would have been related to treatment, dosage, fitness, etc. and was immediately cut off again. I left the appointment feeling very frustrated. This frustration set me into a tailspin of emotions for the next two days and I decided to go back to my PCP to talk about issues I've had. After I explained everything to her, she is now referring me to an endo that she sends all of her pituitary patients to. She added that the endo the neurology office sent me to is really good with treating diabetic patients. So I potentially was not with the right endo for my diagnosis. She also added that the endo she's sending me to keeps her in the loop with updates on her patients. She had no updates on me from the current doctors.
For me, my lesson is to make sure my PCP is aware of what's going on. I also hope to establish a better doc/patient relationship with my new endo that I'll be seeing in April. Ultimately, if treatment last for a period of time I want to make sure I can talk with my endo. The experience I've had that started with the neuro has not been of a positive one and the whole time I just had this gut feeling that something wasn't right. Trust your instincts.
In October I had an MRI ordered by my PCP to confirm pituitary tumor. She then referred me to a neurologist. The neurologist confirmed the tumor & then referred me to an endo plus ordered blood work. By December, I was finally able to meet with my endo but he wouldn't prescribe any medicine until he had me complete his own blood work order. Both labs consisted of 5 tubes but I don't know what the difference were.
Finally, in January I'm able to begin the medicine (bromocriptine) with a follow up appointment with my endo in March (of which again included more blood work).
By March, I've been on the medicine for two months. I made a solid list of issues/possible side effects and questions that I wanted to ask my endo. During the appointment, I proceeded to list out some issues. While they're not severe, they were items I wanted to discuss. He immediately cut me off and said don't blame everything on the medicine. I then proceeded to discuss some of my questions that I had that would have been related to treatment, dosage, fitness, etc. and was immediately cut off again. I left the appointment feeling very frustrated. This frustration set me into a tailspin of emotions for the next two days and I decided to go back to my PCP to talk about issues I've had. After I explained everything to her, she is now referring me to an endo that she sends all of her pituitary patients to. She added that the endo the neurology office sent me to is really good with treating diabetic patients. So I potentially was not with the right endo for my diagnosis. She also added that the endo she's sending me to keeps her in the loop with updates on her patients. She had no updates on me from the current doctors.
For me, my lesson is to make sure my PCP is aware of what's going on. I also hope to establish a better doc/patient relationship with my new endo that I'll be seeing in April. Ultimately, if treatment last for a period of time I want to make sure I can talk with my endo. The experience I've had that started with the neuro has not been of a positive one and the whole time I just had this gut feeling that something wasn't right. Trust your instincts.
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Best of luck and look forward to hearing about the new Endo. :)