Prolactinoma Support Group
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...
I everyone. I have been reading everyone comments and been holding on to hope. My prolactin levels were over 1500. I thought back in March that I was having a stroke. After several blood work and the fact that i have had this tumor for many many years. I went almost 20 okay on no medicine. The medicne side effects and MRI stopped me from taking care of myself. Well, now I have no choice. I started Caborgoline .05mg twice a week.. Wow... I feel horrible. Bad anixiety, depress, shaky ,dzzy.
It is now my 5th week. My added side effects are burning eyes,nose and mouth. Oily hair and skin.
How long does this last and does anyone else have the burning eyes. Plus I think I am going thru menopause. The worst thing is that my husband can't handle any of this. Its really making our relationship not so good.. We are best friends... I feel so sick all day. There are days that I really don't want to live but I was never like this before.. I look at all my old pictures and wonder what happen. I always loved life.
Does this ever go away...
Thanks for listening.
Linda
It is now my 5th week. My added side effects are burning eyes,nose and mouth. Oily hair and skin.
How long does this last and does anyone else have the burning eyes. Plus I think I am going thru menopause. The worst thing is that my husband can't handle any of this. Its really making our relationship not so good.. We are best friends... I feel so sick all day. There are days that I really don't want to live but I was never like this before.. I look at all my old pictures and wonder what happen. I always loved life.
Does this ever go away...
Thanks for listening.
Linda
To talk about what we are going thru .My husband trys but no one really knows unless they have the same illness. I am glad I found you guys because now I don't feel as alone or confused. You gave me hope about these horrible side effects. I am trying to wing off Xanax for anxiety because I just want to be myself and go thru this . I was on lexapro for 3 yes but cold turkey . That was stupid.. I went thru major withdraws. My family doctor was to put me on paxil but I just don't have it in me. This medince mentally drains you.
But I am so happy to hear that the side effects does wear down.
Thank you for helping me. I go thru this everyday. I wish I could just come home and take a nap but I don't want to be alone . The old me use to love being alone. Now I get scared. Scared of being by myself in my head... This will be my 14th pill I have taken. So I do have to cut myself a break. It is still new.
I have always had a sleeping problem. I take a half of a sleeping pill every night. It really works. I used to take a whole but now I don't like mixing to much with cab.
But thank u for taken time out today to talk.
It really was right on time for me.
Linda
Hope you feel better soon. I've not been a member of this group long so the others will probably be able to give more advice. I think we may have similiar problems as I also have a prolacinoma (saw my GP today who said my prolactin was 21 and when diagnosed it was 2400. I am taking Quinacolide (spelling?) but think this medication causes early morning nausea. When I see my endo in Sept I'm hoping he'll say I can come off of meds?) Like you I am going through the menopause and just do not feel like myself and really just want my life back. I have learnt to live with the dizzy spells and sickness but its not nice! For me feeling like this is such a new experience. Hugs and best wishes to you all