I can totally relate. My symptoms are all over the board too. Missed periods, decreased libido, lactation, depression, brain fog, extreme fatigue, forgetfulness, and weight gain. I'm not sure how many other symptoms i can attribute to the prolactinoma but those are what sent me to the doctor.

I was diagnosed in 2006, with an 11mm prolactinoma. It's around 9mm now, but the symptoms can be a pain! I had no periods at all, fatigue, lactation, and way decreased libido. On the meds I almost have no symptoms left. Hang in there!

Lactation, no libido, missed periods, mood swings, tired a lot, weight gain. I too have a 4mm tumor. I had to double my meds on Bromo and got severe chest pains (from 2.5 to 5 mg) so now I am on Dostanex and so far no chest pains. I won't know if it is working yet until I go get my labs in another month. Good lucK!

I have a 6mm prolactinoma, and i've been on medication since beginning of July.
It's interesting, because i've always had my peroid, but that might be because i'm on birth control.
I feel like i'm over-reacting...but i can definitely notice: Headaches, dizzyness, my memory is shocking, forgetfulness, extreme constipation...

I can blame my moods but i know i'm quite a moody person in general hehe.

Hi, I was diagnosed 2009, a 3.5cm tumour, prolactin level a staggering 35.000, syptoms, as the tumour was growing into my synuses, lots of synus related problems, severe headaches only in the right side of my head, feeling really low at times, nervous, foggy, shocking memory since being on Cabergoline, I've just been on holiday and I struggle to remember places we visited. Im looking forward to my next scan at the end of the month to see how the meds have reduced the tumour, prolactinj is now down to 1,300, still has a way to go yet but gradually getting there

Hi, I didn't mention the uncontrolable temper if something go amiss. I was never like that before Cabergoline.

Mine is 9 mm, my symptoms include sharp pains in my breast, fatigue, moodiness, massive weight gain (work out 5days a week good diet, lose about 2 lbs a month, if I'm lucky) low libido, missed periods, and my favorite,lactating. I'm having surgery at the end of the month, wishing you luck on this journey. I know it's no fun

I've been wondering the samething. My doctor said I could be taking the meds for a year. My tumor is only 2mm. After only taking the meds for a month my prolactin returned to a normal level. I have had regular but heavy periods. My anxitiy level is thur the roof still. I get dizzy when I stand up, but my lactating is almost gone. My major symptoms right now are mood swings and anxitiy. I hope to find out more on the 5th. Good luck!! :)

I have no symptoms at all except missed periods, which were not normal for me. My tumor is 10mm. My level returned to normal on the cabergoline within 6 weeks. I have a follow-up MRI 6 months after being diagnosed, in September.

I was diagnosed this year with a 7mm prolactinoma which is being treated with cabergoline. The headaches are the worst, almost daily. Inability to deal with stress and anxiety is a problem, as I have a difficult occupation and I feel crippled with weariness and depression often. My husband doesn't realize that I can't be the workhorse that I have always been, and that is the most difficult for me. The expectation that I can do everything (I work full time and I have two children) is still there and even when I am completely exhausted, I have to keep going. When I go to bed early with the kids, I know I will have to face the impending criticism from him later. (eg. I don't want to spend time with him). I pretty much have all the symptoms everyone else is describing as well.
On the up side, I try to eat well, mainly vegetarian and I juice daily. The juice recommended to me for the pituitary system is carrots, celery, dandelion, parsley and oranges. I try to juice once or twice a day, and not only this recipe. I think eating a lot of vegetables helps with the constipation and weight gain. Best of luck to you all, I'm very happy to have found this site and now I know I'm not just crazy :)

Hi Crystals83 & Everyone!
I'm really glad to have found the site too... It is good to know we're not going crazy!! Ha, ha. I was just diagnosed with a 1.3 CM tumor in June, 2012 and I had "symptoms all over the place" too. Some of mine are: period abruptly stopped, hormones low, head nausea, constant pressure in the back of my head, shortness of breath, extreme fatigue, dizzy, feel weak, low blood pressure, digestion slowed down, weight gain in the belly area, "weird" metally taste in the back of my throat, forgetfulness & brain fog, feel overwhelmed, less patience/quicker to get angry, and can feel a shaking/vibration inside my head when I sleep. Has anyone experienced this last one??? So far I haven't heard anyone else mention this. I'm on Cabergoline right now and even though it got my Prolactin down to normal, I'm struggling with it's side effects. It's been a challenging jouney. I wish us all the best!!

I'm so pleased I found this, I thought I was the only one with so many different symptoms.
I was diagnosed in July with an 8mm prolactinoma. I started on cabergoline in August.
I have good days and bad days but when its bad its awful.
My periods were all over the place and we were trying for another baby and getting no where so thats how I found out I have this in the first place. I had my first period in 5 months 2 weeks ago.
Other symptoms are - lactation, burning breast pain, stabbing pains in head, near constant headache, pins and needles type feeling in my eyes, white vibrating flashes in my eyes when i'm trying to sleep, pins and needles in hands and feet, abdominal pain, twitch in left eye, twitch in abdomen, dizzy spells, constipation, nausea, tiredness, stiff sore neck, dry skin, zero sex drive and weight gain. I'm over weight anyway but its just creeping up and up no matter what I do. Some of these things started or got worse after starting the Cabergoline. My endocrinologist has said that it can take 6-12 months to feel any benefit from the treatment! I'm so fed up, I've got 2 young kids and feel useless, I can't play with them like I used to, there's been no running around with them for ages. I just want some energy back! On a bad day i'm lucky if I can drag myself out of bed.

I am new to this group and was wondering if anyone has had some of the things that I am experiencing. I have known about my tumor for about 11 years now and have been on Bromo for all of that time except for when I was pregnant. I have been stabilized for years with my prolactin levels normal and no more tumor growth, although no shrinkage either. In the past two years, however, I have had some new symptoms which my endocrinologist says are unrelated, but I'm not so sure. I think I would like a second opinion. I have had a lot of body aches and pains, headaches, hot flashes, cold sweats, dizzy spells, nausea, belching, strange body odor, sinus trouble, ringing in my ears, stiff neck and shoulders, flashes of light in my eyes when trying to sleep, brain fog, panic attacks, depression, horrible mood swings including extreme rage, thoughts of suicide, heavy bleeding with clots every two weeks, shortness of breath, and cyanosis in my finger tips. Could these things be related? If so, why all of a sudden am I experiencing this stuff when I have been stable and symptom free for so long? Should I seek a second opinion after being with the same endo for over 10 years?

While I am not a woman, I will say - Mamacamp - that your symptoms are right in line with having a Prolactinoma.

I've experienced the vast majority of what you describe. You are not alone.

Thanks, Tigertales. It's good to know I am not alone. Going for an MRI in the morning and to see my endo Wednesday next week. Going to give him one more chance. Just tired of feeling like I'm going crazy because no one will believe that my symptoms are actually physical. They keep suggesting antidepressants and anti-anxiety meds which just seem to me to be bandaids and not looking for the cause of my symptoms. These symptoms are becoming more frequent and debilitating and my poor family is paying a high price for it. I feel so guilty half the time because they are all having to pick up for my slack! I am sure my husband is exhausted! He keeps having to come home from work to help me take care of the kids because I feel like crap. Thankfully, he is very patient and understanding. I'll post more after my appointments. Thanks again for the empathy.