Great idea! I love to keep a sense of humor about this stuff, its a great coping mechanism. So, I think I will name mine "Bane."

Shithead. Pronounced "shi-thead".

I would call mine "If it ain't something it's something". But ya would have to say it with style.

I have called mine, 'Casper' as in 'Casper the friendly ghost' because I want him to be friendly and unseen :-) Since I named him, I can talk to him which really helped when I was at my lowest. :-) I would recommend it 100%.

Melissa

I named mine Wesley after a guy at my old work. He was always that annoying person that was bothering you, sort of how I thought of my tumor. It was always that annoying thing in the back of my mind. It also helped when I talked to my friend because it was easier for us to talk about Wesley than "my tumor".

OMG, you're all cracking me up right now... So funny... Love your names & stories. Lucifer - LOL! We can all relate to the pain our little guys & gals have helped to bring about. Mine is called "the hitchhiker." I wasn't trying to name it, but one day my cousin called it "the hitchhiker in my head" & the name stuck. The next day she texted, "Didn't your Mother tell you not to pick up Hitchhikers!!" And I said,"That's right, it's time for this Baby to UNHITCH!!!" It's gotten a free ride long enough.... Please, vanish back into the nothingness from which you came :)

On a serious note, I decided early on not to "hate it," but rather befriend it as best as I can. I've asked to learn what it has come to teach me/why has it shown up on my journey? I've received some answers to this, but I'm sure there's more to unfold. My desire is to truly live those answers. So far I haven't done a great job of that, but I keep at it... every moment is another opportunity.

I've thanked my hitchhiker for the lessons it's brought & I've said to it, "I got it, thank you, you can go now." I feel it's important to give our hitchhikers permission to go, & to do it with love & gratitude. I know I'm writing all of this at the risk of sounding "wacky," but I can assure you, my hitchhiker hasn't gotten to that part of me... yet... Ha,ha.... Just kidding:) :)

A couple of years ago, I was reading an article from a Psychoneuroendocrinologist (yeah, I know, a mouthful) and he was asked about who had it worse with the problems with associated Pituitary problems, adenoma's and so on.

Without hesitation, he said, "Prolactinoma's".

This came from his observations of the fact that our hormonal tumor scours Dopamine in the brain and in the body and is, in varying degree, something that simply keeps us drained to the extent that none of us can ever feel safe from the crushing depression that exude itself into our lives.

I was diagnosed 7 years ago. I had symptoms for well over 20 years before my diagnosis. My youthful Dopamine levels have departed me now and everyday is a little more difficult than the day before.

But, living your life on your knees teaches you a lot about yourself...your human condition...and, from that, you learn a whole lot more about your world around you than you ever would...were you to continually walk in your own strength.

You come to appreciate a soft hand on your shoulder. You also learn how to softly touch others as well.

Well said tigertales!

I agree! Well said Tigertales. Thanks for sharing :)

I totally agree!
Considering the prolactinomas that we have, its hard to believe that it isnt depleting our dopamine. I thnk that obviously we arent making enough dopamine otherwise the tumor would go away on its own right?They wouldnt put us on dpoamine agaonists if we had enough dopamine in the first place.
I have also read that if you dont have enough dopamine it can make you feel like crap and depressed and I am a perfect example of that.
Im also wondering why I had such horrible side effects from the meds, such as increased depression?

Totally agree with tiger tales and k2012hi, i have yet to name my prolactinoma and at first i was really scared but i'm slowly learning to accept it and try and learn from it instead of spending my life wishing i didnt have it! I seem to be one of the few who does not suffer from depression with this condition, the issues i have are just feeling so unwell and i do get sad when i cant do the things i would like to do, but i do somehow manage to keep quite upbeat.

Thank you Tigertales for what you shared. I so agree with you. You know I'll go along and feel really good and then just as suddenly I fall into what I label "the Abyss." But your words were very encouraging to me today. Thanks

I had my tumor named for me in an effort to make me feel better....."The Big Booger." LOL. But I think I should think of a human name for it if I ever have to discuss it....Obadiah....Obie for short. :-)

Well, whatever name it has...it's kickin' my butt right now.

I felt good for about a week, but the last three days are horrible.

When I feel really bad, it seems as though the hot flashes are much more intense and last longer.

I simply refer to mine as my head slug... Cause it drains me ;)