I've taken Cabergoline for a little over a year now, and it really hasn't had any effect on me, except the occasional small headache or dizziness. I think it's because when I was on Bromocriptine before, it was really awful and didn't change a thing. Because it was so severe, the side effects of the Cabergoline couldn't compare. It's been working for me, but I've also had surgery and the Gamma Knife procedure. Surgery IS a scary thought, but it's not as bad as it seems! I had a transphenoidal resection (they cut above my teeth and went in through my nasal cavity to reach the tumor) but it was fine! I had to stay at Children's in Dallas for 5 days, but since I healed so quickly, it was almost like a vacation for my mom and I. The only thing we had to worry about was what we were going to eat those days! :) Hope I could help! If you have any questions about it, feel free to ask :) Good luck!

Peace,
Tiff :)

Wow am glad to hear that your surgery was such a success :) I've also had never heard of gamma knife... but I am defenatly going to give caborgiline a try and hopefully I have sinilar results to yours. :)

Hi Sqarciak,

Welcome to DS.

I have been on Cabergoline for 13 years and like Tiff, I have occassional headaches and dizziness. I take it at night just before bed and that allievates the symptoms for me.

Play around with the times you take it at during the evening to see what works for you...however I would say that a daytime dose is probably not a good idea.

The next step for me is surgery and I'm scared too but I'll give it a go and see what happens. Meds are no longer controlling my prolactin levels so I suppose its kinda my last option.

Best of luck,

Michelle :)

thanks Norwood
yes surgery sounds like such a drastic option
I am also really wondering how the quality of life would be affected by either the meds/surgery, I really enjoy hanging out with friends and having a few drinks and I wonder if I would ever be able to do that once I start down this road :(

I have never been advised not to drink alcohol. Its so important to have a social life. I'm not a big drinker myself but I also would never restrict my alcohol intake because of the meds or the tumor.

Perhaps I'm a little bit reckless about this... but f**k it life is hard enough with prolactinoma without sacrificing more of ourselves then we have to.

Personally I would rather have the few side effects of the Cabergoline then put up with the effects of the prolactin.. but thats my choice.

Give the Caberg a try and see how you get on, you can always stop taking it if its not right for you.

I love it :) that's how I feel to Norwood, all of this treatment is supposed to make it so we can move on with out lives and feel more like ourselves and not make it worse for us... I will give this med. a try and see how it work out. My appoinment is on the 21st of April so lets hope everything goes smoothly for me. thanks I really enjoyed your post