Hi there. My daughter had prolactinoma 10 years from age 16 to age 26. After the drug company stopped making the name brand Cabergoline (dostinex) and she had to take the generic the drug and it just stopped working. And yes she had all the side effects you mentioned in your post + problems with her eyes, constipation, hallucinations, etc. She had the surgery, transphenodial done 3 years ago. She is fine now and only wishes she would have done it sooner. However, if u do opt for surgery you MUST do your research and pick a Dr that has done thousands of pituitary surgeries.

I've had two surgeries for it in the last year. It looks like the second was a success. I had awful complications but still don't regret it. You must do research so you are prepared, though. If you have any questions I can help. Best wishes and good luck x

So I see my Endo 2morrow, Defo gonna push for surgery, see what he says as my mood and general anxiety/depression issues are still very persistent, my mind feels like scrambled eggs pretty much most of the time, hopefully if and when I do get surgery, some or most of these issues will be gone, fingers crossed!

It's very dangerous. Some people experience little complications, others many. I nearly died twice. I think I was very unlucky though.

Not to put you off, as I say I don't regret it, just to prepare you for possible outcomes.

" Hello all, I am new on this blog and I am so happy to see so many people are here to help out.
I am 43 yrs and have suffered from Prolactinoma for last 8 years, thats when it was initially dx. My prolactin levels were >1000 in Jan 07 and I was put on Cabergoline and within few months it came down to around 125-150 range. I had Macroadenoma >2.2cm if I remember correctly...decided to go for surgery after researching the best EndoNeuro surgeon in Canada..even went to Boston to consult with Dr.Laws and he recommended one in Toronto.
After Surgery was done in 2010 Mar...my Prolactin levels went up to around 500 range and they found later that after they removed the tumor that they could see, they found same size tumor behind my eyes where they can't access and it could be fatal.
Recommended to go for Radiotherapy after consulting different options and knowing all the SE that might come later.
Still after many years of struggle no change in Tumor size and still dealing with high prolactin levels...still on Cabergoline 1 tab twice a week with all the SE...feel like zombie, dizzy spells, severe constipation, no energy because of low T levels...recently tried Androgel and Prolactin levels went up by 50%.
My sincere advise would be do your due diligence and make sure you get the right doctor and don't be too optimistic...If you r lucky than it might be succesful ...good luck