Prolactinoma Support Group
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...
I went through this very same surgery back in March of last year. For me, due to the size of the tumor, it was a 12-hour surgery and then I spent 8 days in the hospital.
I would just say to be prepared to be a little tired afterwards. The geniuses in the hospital also asked me if I wanted an anti-nauseant after, yes after spewing up something that looked like it came out of the exorcist. Little joke, but it was probably all the meds and anesthesia I had in me.
I guess be prepared to sleep quite a bit and you'll get lots of nurses coming in to give you those heparin shots in your stomach constantly if they keep you for a number of days which I'm betting they will. That was a pain but they do that for safety reasons. Your nose might also be packed for a day or two.
I've been told it's possible to lose your sense of smell from the surgery. I didn't after mine, but there's the possibility I might have to go through it again in which I case I certainly could. During recovery you might also be sent to an ENT person to check healing inside your nose and to remove scar tissue should it form if you're indeed going through the endoscopic (endonasal) resection surgery.
You will definitely need time off work, minimum a month. I was on disability for almost 4 months, but don't freak out about that. I didn't really HAVE to be on disability for 4 months, but given everything else going on in my life at the time, I requested an additional month. You could probably go back to work after 1-2 months or maybe work from home if you can but I would not plan on doing that for the first few weeks post-surgery.
As I said, I was tired for a while after surgery. Took me a while to get some of my strength back. I'm sure you'll do fine, though! Nothing to be super scared about so long as you're in good hands with a neuro-surgeon that you trust.
I'm actually 36 hours away from my tri-monthly MRI to check on mine. Been pretty stressed out about it to be honest since I don't know what it's gonna show.
Keep positive though. These surgeries tend to be very successful.
Thanks for the reply.
I am back home from the hospital now... day 4 post op.
I feel ok, just weak and tired.
Overall, it was a good experience. The doctors and nurses took very good care of me.
There was a day where they were concerned about diabetes insipidus, and running lab work every 2-4 hours, I started to feel like a pin cushion.
You are right... Heparin shots suck! I feel for those who have to do that daily.
Now, I am eager to see the lab's Prolactin results, which interestingly were never ordered. So I am not sure when they are going to start looking for the result of the procedure.
Thanks again for the kind words, and support!
I hope your recovery continues to be uncomplicated.
Go into your surgery with a positive attitude, and I am sure you will be fine.
I am on day 6 post op, and feel - ok.
I am still pretty tired/fatigued all of the time, so I nap as needed.
I work from home, and have managed to work 2-4 hours combined per day... if and when I feel like it.
I am taking 2 or 3 Percocet per day, and that seems handle the headache/soreness just fine.
If your Doc recommends the NeilMed Sinus Rinse, buy it in bulk! I got mine at Costco out of convenience - and I am so glad I did. I use it 3-4 times per day, and it is a huge help in reducing the sinus pressure / gunk.
Plan on having your energy zapped unexpected... so plan ahead some meals that can be pulled from the freezer, and such, so you can rest when you don't fill up to doing such task.
Post back here if you have any questions or concerns!
Good luck!
I will update as soon as able.