Post-Traumatic Stress Disorder (PTSD) Support Group

Find support with others who have gone through a traumatic experience. Whether you have chronic or acute PTSD, we are here for you.

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Tired of being chronic not cured

Community Leadermujicaptsd
mujicaptsd

I'm having a low day myself with my other chronic illness.  Not the PTSD, my new face to face support group has really helped me with that this week.  It's the CKD (Chronic Kidney Disease).  Having only 50% kidney function to bring oxygen to my blood, it gets tough living at 7,000 feet of altitude in my beloved new mountain town of San Cristobal. 


I'm worn out physically today, just barely shuffling along on my cane, and I've got a lot of geezer aches and pains going on.  Its one of those days, and I'm so very tired of this and knowing it'll never be cured.  I got CKD forever from a pdoc I only had for a hot minute over prescribed Seroquel for nightmares and gave me kidney damage. 


I fired him and got a better pdoc who then got me on Prazosin for nightmares, which is liver processed and safe, but the kidney damage was done from that other clown of a pdoc.  I'm so angry about hurting so much from it today!  Support welcome.

Community LeaderSunCloudJD
SunCloudJD
Big hug Muji.... I'm so sorry that you're struggling.... You've been busy everyday since you've moved... Maybe some time to just be may help

Chronic illness can be overwhelming at times... Another hug and a blessing...xo
rose07042k
rose07042k
Sending you a hug Muji.
arfie
arfie
Gentle empathy, Muji. My list of chronics doesn't seem to be getting any shorter. These days I don't seem to have much choice but to work smarter instead of harder. I quite literally use a wheel chair to keep up with my foster kids. I call it, "The Porch Patrol Chair." I'm thinking about equipping it with lights, sirens and a gun rack.

How 'bout some inspiration from Pete Seeger? He managed to actively balance his chronics into his 90's.

https://www.youtube.com/watch?v=MuAUG-AxweQ
JudicatorPrime
JudicatorPrime
Sending hugs your way. I understand your plight on so many levels. When I was on dialysis and my function was only 10% I had so many days where I just wished, despertly longed, to be well. Even with a transplant, facing the knowledge that kidney disease is chronic and that it will be with me the rest of my life makes me cry sometimes. Its easy to ignore with a transplant, because I feel so much better, but I will have to go on dialysis again some time in my life. Transplanted kidneys don't last forever.

But I hear your pain, acknowledge it, and wish I could say or do something to give you hope. Living with CKD is such a struggle, but you are strong. Strong for not giving up, strong for continuing to find peace and enjoyment in life despite being sick.

And you are not alone. If you ever want to vent about, I'm more than willing to listen.

Sending you understanding and support.
Tropicaloo
Tropicaloo
Aww muji sorry you are feeling low. Like Sun said just take some time for yourself today. Just lie around, eat good food and watch a lil Netflix or whatever makes you feel good.
Jobbie
Jobbie
Support to you my dear friend , we are here for you , sending you comfort , hug , thoughts and a prayer !
Beryl367
Beryl367
Sorry you're having a low day.

Even with your CKD will you acclimate to the altitude eventually - not like if you didn't have it, but at least to some degree?

Sending you support while you water this, and prayers.
Community Leadermujicaptsd
mujicaptsd
Thanks, everybody, it really lifted my spirits to get this support listed here. Such kindness really makes a difference. I heeded advice and took today off, and it's already helping make me stronger. And it's true, I will acclimate to the altitude eventually.

I guess what I learned from this is that I didn't realize I still had bottled up anger at that pdoc who caused this kidney damage by over prescribing Seroquel for my PTSD nightmares. I don't recall complaining about my PTSD nightmares overly much. It seems to me that the pdoc was pushing his own agenda, not responding to mine. Nightmares, after all, haven't been my most persistent and bothersome long term PTSD symptom. For me dissociating is the greater problem. To me a nightmare is at least feeling something about trauma. Going numb and dissociating to me bothers me more because it means that trauma has taken my feelings away from me.
Community Leadermujicaptsd
mujicaptsd
As I wrote elsewhere here, I had the most pain free day for walking yesterday Sunday that I'd had in a long time!
Pixie1
Pixie1
Hi Muji, I just saw this and glad you are taking a turn for the better!!
I agree with the posts here, take time to just be... deep breathing and meditating greatly helps me, especially EMDR which I do on my own...
The idea of your body adapting to the high altitude brings hope too...
Peace and love, be gentle and good to yourself always.
Pixie1
Pixie1
And dealing with the anger at the root of it all, Great work Muji!!!!
Community Leadermujicaptsd
mujicaptsd
It really helps to have this place to turn to to get it all out when things go wrong, Pixie! Thanks for being there for me now. I'm have a GOOD day today!
Secouya
Secouya
Muji, my friend. Chronic conditions can be frustrating. I try not to think about mine, but sometimes I can’t avoid thinking about them. Sometimes I have to take time out for self-care. Sometimes that is getting extra rest, or using a heating pad and/or ice. Sometimes it’s just taking some time out and doing something I really enjoy. There is a book called wreck this journal to help get your frustrations out it’s kind of funny or I use DBT cards. I pick one out every day and try to practice what the card suggests. Hope you feel better soon.
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