Hi Angela, You would need to discuss pregnancy and myo with the doctor. I wish I was an expert on that topic, but I am afraid you would get the "Barney Fife" approach if I was to chime in on that topic.

I do recommend as a retired teacher, that doing some substitute teaching or volunteering in a public school is a valuable experience. Substitute teaching allows parents-to-be to consider costs, training, environment, child development, discipline, and many lessons to prepare for having a child. Most important, substitute teaching gets you into the training mode. You will get an important view of reality with kiddos that will help your preparation. Parents are a child's first and most important teacher. Good parenting and teaching is constant, consistent, and important at every age level too.

Gather information and be well prepared. Best wishes.

thanks trpt1i appreciate the feed back :)
I'll be discussing this with my husband and doc and take it from there.
i do know that i want to be strong enough to handle it...but i also cant help but fear if i wait linger then i run the risk of having a flare and have to wait more years. idk :/ lol

YAY!! i'm in the same place you are :) still working on getting off my last meds but doing great. also 25 and married for 2 years!! just met my best friend's new baby yesterday...gettin the fever! please let me know what your doctor says, etc! would love to hear from people our age and their experiences with pregnancy and such

Joy!! thats great! :-D I'll def let you know what he says.
Now what meds are you on? and how are you feeling?
Do you feel like youd be able to handle a child currently?

i have been off prednisone for over a year, and I'm on .5 MTX (i don't know what that is in mg ha). will probably be going to .3 today if my bloodwork still looks good. my doctor really wants to take his time getting my off MTX since i was so sick but I'm like...my bloodwork continues to be awesome and maybe we can speed this up a little ha. he wants me to be on each lowered dose for a year and i'm wondering if he's just trying to keep me around for the money? i love my doc though!!
i am feeling great. low energy is my biggest complaint and sometimes achey muscles but i continue to find remedies that work for me and i feel like i'm better than ever. however, i don't know if i'll EVER feel like i can handle a child ha! i feel like i will needs lots of help. my hubby is amazing and will be the best dad and help to me but it's just really nice to nap whenever i need to, slow down when i need to, and i know that won't always be possible with a little one ha.
SO glad you are experiencing continued strength off your meds!! I'm sure us being younger has a lot to do with it

wow a taper a YEAR?? I think its prob good your taking your time but i can imagine how frustrating that has to be :/
I asked my hubby if he would be willing to put in the extra help if i were to need it when we do have a child and he said yes and it seemed sincere. so that great we both have wonderful and loving husbands to support us :) Have you ever asked your doc about babies?
I'm nervous to to be honest i dont want a bad answer.....We all should be used to waiting now but its SOOO hard sometimes... lol

so thankful for supportive hubbys!! my husband picks up ALL my slack with a willing heart, so i'm really thankful for that and know he would be the same with a baby!
i mentioned having kids to my doc a long time ago and he didn't say much since i wasn't seriously considering it yet. he said he has seen people with myositis have great successful pregnancies and that it even relieves the disease symptoms since the body is majorly taking care of another human too:)
i agree-so hard to wait sometimes!!!! what meds were you on that you are off of now and how long did it take you?!

We are so lucky !!!
I was on predisone for about 8 months and then stopped and did acthar gel for 6 weeks and have been med free since :) six months now just gaining strength daily it feels :-)

that is amazing!!! congrats! :)

thank youJoy! that means a lot! i hope you can be off all soon! :)

an update - had my appt at the cleveland clinic yesterday!
EMG showed no new inflammation!! :D just a very small margin showed which they said is common the the healing phase :) im stoked!
in terms of conceiving...basically got the green light. They told me that their biggest concern with Myo and pregnancy is the meds. im on none so they feel i could have a successful pregnancy although they can not promise i wont flare..or will flare. which we all know. we just dont know what this disease has in store for us in the future :)

Hi Angel. Great news on all fronts. Well done. Best wishes.autumm

That's good news, Angel. I hope all goes well for you.

thank you guys very much for your kind words :)

Hi ladies - I haven't been on here for awhile, but I was diagnosed with DM when I was 24 and newly married, and of course, the question of kids was a big issue, so I know a bit about what you're going through. I'm now almost 32 and I have a beautiful 2.5-year-old daughter and 4-month-old son. It was a long, hard, sometimes heartbreaking journey, and some days are still kind of tough - but I just wanted to say that it is possible! I wish you both the best of luck, and if you have any questions, feel free to send me a message. Big hugs!