Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
Lots of love,
Norma ...
Lots of love,
Norma ...
in my case I was CMV negative, as probably was your nephew, and my donor was positive. I became quite ill a few weeks later and it was diagnosed as a drug allergy but I was convinced it was CMV related (maybe both).
good (or bad depending on your perspective) news I'm still here.
once the infection passes it will probably never rear its ugly head again and most people have no idea they are CMV positive.
and speaking of positive, a positive attitude will benefit you and your nephew as he fights to get better. don't let him know you are worried.
Thanks again for your insite. Love, Norma ...
I was in the hospital for several days but remember a drug allergy was also involved. they took me off all meds and gradually added them back to find the culprit, which turned out to be something to prevent UTIs, not something important.
I am allergic to sulfa and this was some sort of imitation that mimiced sulfa but hit me more than sulfa ever did.
my neph complimented me on self-diagnosing CMV but never confirmed that I had an outbreak.
your nephew will get better, we will all pray for him.
Yes, I understand your frustration. This is something that they do not tell you about, and I was struggling with this all last summer. It turned out that I DIDN'T have CMV but I was very sick... and waiting for tests up here so far from my transplant center was crazy. Since then I have dealt with others who are left in limbo for a while as well trying to find out what they have.
Yes, actually most people have been exposed to CMV, and both my donor and I had the antibodies... so when your immune system is compromised by these drugs, you have to watch out for them. Another virus they watch for is the BK virus.
I do hope that this smoothes out SOON and that all will gain strength and courage. Big blessings to you and yours!
Lots of love,
Norma ...