Polycystic Kidney Disease (PKD) Support Group

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

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Kidneys & Bladder
/ Polycystic Kidney Disease (PKD) Support Group

In bed ....

tryn2bpositive
tryn2bpositive
I hit the wall and have climbed into bed. I've been nauseous for at least a week. Probably longer went to dr couple weeks ago he thought I had an aortic anyeurism. I knew I didn't. In all the 'excitement' he forgot to order my labs. My gfr went from 59 to 51 in less than 3 months so he said I shd be tested again. Lost 8 lbs since drs apt. Headaches naseua dizzy get exhausted then there's the achey back side thing with those damn kidney stones moving. Got lost driving home the other nite not sure what happened a familiar route then I didn't know where I was. Work is so hard. Had usual brkfast of two eggs scrambled with onions celery red pepper and mushrooms but added cheese. Got diarrhea fierce then the usual naseua phenegran is in the car so ate ginger which worked. I'm exhausted! The lab orders still haven't been done even though I been calling. So laying down. Need to sleep now
deleted_user
deleted_user
How are your eyes? I have high spinal fluid pressure that puts pressure on my optic nerve. It caused some problems in vision for a few seconds in the morning. It also caused pressure and I had a problem with short term memory and feeling general stress. Some that have it have very painful headaches. I read that others that have polycystic kidney disease also have this problem. My createnine and GFR function went down when this was diagnose. Something you might want to get checked.
tryn2bpositive
tryn2bpositive
Just saw the optometrist a couple weeks ago, would he b able to see it? Will look into that. The drs office left a msg before 5, my labs were faxed to the hospital so I can get those down and I have an apt on Wed. with him for review.
Slept a couple hours, got up was able to eat, sat to watch a movie and fell asleep, just woke up and going back to bed. I can't remember ever being so tired. Everything just feels wrong. I m tusting that when I wake up I will be full of vim and vigor...if not that at least able to drive so I can get out to do the errands I couldn't do today!
deleted_user
deleted_user
When I first noticed the symptoms, I told my eye doctor that my vision was blurry. He did not find anything wrong. My husband said it sounded like Glaucoma symptoms and to ask the doctor to check for that. When he did, he saw that my optic nerves were enlarged and enflamed. He sent me to an opthalmologist who then sent me to a neruologist. I now see a neruopthalmalogist that does both. I had the lumbar punctures and the MRI's. My pressure was very high, but nothing was found. I have since found out I have a pineal cyst, but the neruosurgeons do not think it is causing any of my symptoms.