Polycystic Kidney Disease (PKD) Support Group

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

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Embarrassed!

norma67
norma67
I know of no place that I can ask this question, but here goes. I am up all night and I mean all night with muscle cramps, which I understand is from kidney failure. I drink 10 ounces of tonic water before going to bed, sometimes it helps, others it doesn't. My doc has told me to begin taking vitamin E, 4000!units a day. I have begun that, but the worst thing is I have to go to the bathroom all night long and I mean all night!! It's so frustrating as you can imagine and I am exhausted every day. What on earth is causing that? More kidney failure?? Anyone have any experience with yet another weird symptom? Thanks guys, I am so tired!
Lots of love, Norma ...
Chewitt
Chewitt
Sorry Norma. I did wonder whether "fobbed off" might be too English! It means, in this instance, mislead or deceive; basically given information which is wrong (by the medical profession) to placate you. It sounds like the possible mis-information might just be what you've read, though, and that the medics have told you nothing at all.

Be careful with supplements. From what I've read HIGH levels of Magnesium can result from chronic renal failure (eGfr below 20-30), eg.

http://www.nlm.nih.gov/medlineplus/ency/article/003487.htm

http://ckj.oxfordjournals.org/content/5/Suppl_1/i39.full

This second article is very in depth and explains that not much is known about how Magnesium levels are affected in the earlier stages of kidney disease, but as it progresses and in dialysis patients, levels are raised.

This article is about Magnesium generally and cautions against taking supplements without medical supervision, particularly if you have kidney disease. It also details suggested dosages and possible drug interactions.

http://umm.edu/health/medical/altmed/supplement/magnesium

Be careful with this Norma. There seem to be a lot of pitfalls. You don't want to end up with a new problem.

Chewitt
deleted_user
deleted_user
Norma, WHAT? my neph checks my mag as part of bloodwork. I'll have to look up some bloodwork to see where he gets it, blood or urine (definitely NOT 24 hr. urine).
I was once told magnesium testing is more expensive.
norma67
norma67
Chewitt, you are right, I cannot take the magniesum supplements, dang! I asked the druggist and he said no, so I called my new doc and he said no! It's too late in the game called PKD! As for the misinformation about testing for magnesium, it was right there on the internet right along with what you had said about bring tested by bloodwork. I guess we can't always believe what we read on the internet! It all depends on the source I guess. Thanks anyway ...