Oh yeah and just yesterday I jumped another 5 pounds! I cant take much more!

First of all Plykid, no one has the right to scream and yell at you for any reason! Do you understand that to begin with? Obviously something is amiss with you PD and you need someone to help you out. Is there a staff member at the unit that can help you, there must be someone and please don't take this out on yourself, you have done nothing wrong, understood!! You are doing your best and no one can ask anymore than that of a person. Please don't allow your doctor to talk to you in any manner that is disrespectful, no one deserves that least of all you! I remember my sister having all sorts of problems just like you are talking about when she was on PD, and to tell you the truth, something was wrong. Please don't allow this to happen to you. I want you to promise me that!

lots of love,
Norma...

I agree with Norma...no one should be yelled or screamed at for anything and especially by your doctor.

*hugs*

Keep us posted and I hope you find the answers soon!

Yes, tell that doctor that you feel bad enough without him scolding you like a little errant child!!!!!!! I would like to come and smack him.

I am wondering if you are having this dwell too long and are starting to absorb some of the dextrose. I don't know as much as I should of yet, won't start it myself until after I heal up from surgery on Monday. But I have been wondering for sometime just what this will do as all these years I have avoided sugar. Also, how about the weight of the solution that is in your body, that's not YOU that has weight.

I don't know, but we are all on your side. Keep us up on this, we are rooting for you.

Blessings
Heather

Thanks for the support guys. I won't know anything until Thursday thats when I go to the clinic.

I am not familiar with the specifics about PD, so I cant help you there.
However, jumping up 7 pounds in one day just isnt right. I dont think anyone could go up that much in one day, even by pigging out all day, unless they were pretty much in food depravation and all of the sudden hey spent most of the day eating, which obviously is not your case (professional boxers are known to do this after the weight in and before a fight).
Heather brings a good point; I am assuming you found the increment of weight after you drained out the solution, right? But even if not, it doesnt make sense because I seriously doubt that the amount you put in is anywhere near 7 pounds. So I really dont know, hope you get it figured out.
Two things I do wish to tell you. Not in a million years say, or even think about giving up. I know you mean this as a figure of speech, but you have come to long of a way for you now to say this, so come on, cheer up, and continue your fight. You are doing excellent.
Regarding your doctor, I dont know what his problem is. It takes a special kind of person to be a good doctor, not just someone willing to sacrifice years of study for a nice profit. It wouldnt be fair for me to judge your doctor because I dont know him, but you have complained about him before. Doctors should be compassionate, and should care for their patients. He has absolutely no right in yelling at you. I suggest you talk to him with respect, and ask him to help you out, instead of screaming at you.
BTW, if this this continues, any chance you can change doctors? This may not be a good idea now since you are pretty much new with dialysis. But you should at least consider it for the future.
PKDAD

Hi polykid and everyone. I'm not new to the site but new to posting. A quick bit about me before in respond to polykid. I was diagnosed with pkd 4 1/2 years ago, told I needed a transplant one year ago, had a brother who is a perfect match, then found out he has hypertension which is not currently maintained with one bp med, and then discovered after a long parade of potential donors that I am highly sensitized ( pra of 99). As a result started pd in august.

So, polykid, a couple of thoughts....it definitely sounds like you are retaining fluid, particularly if none of your drains is less than 2000. My understanding is that should not happen. Could there be fibrin in your line? Do you use heparin regularly? I would inject it into the next couple of exchanges to see if that helps! Also, cut back on fluids (do you pee? I still do!). And try to go low salt. Let yourr pd nurse know, because it sounds like you're reabsorbing, and that shouldn't happen even once a day. My nurse has told me if my dwell is too long ( over eight hours) I could reabsorb. Definitely call her, because there could be a problem with the line

This is a great group, you have been such a help to me from a distance, I hope I can return the favor a little.

Hang In there polykid, and thanks to all of you for creating this group.

Diane

Whoops, meant one of your drains is less than 2000!

Diane!!!! Welcome!!!!!! Thanks for the experienced advice. Please, do hang around, I am sure we can all benefit from your wisdom and experience.

Blessings
Heather

Thanks Heather. And good luck with yournupcoming surgery. I was worried about you the whole time you were in Hawaii! Once you actually start pd, younwill be amazed at how much better you feel.

Diane

Diane,
Welcome! One question..how is it that you are sensitized? What does pra mean? Does plasmaphoresis work in your case? How do they find a potential donor now?
Polykid,
I'm so sorry you are going through all this. Please keep us updated and I hope they get to the root of the problem quickly.
Hugs,
Jessica

Jessica,

PRA stands for panel reactive antibodies. They don't really know why mine is so high, usually high sensitization comes from either blood transfusions ( I have not had any), transplants (obviously nome of those yet!) and pregnancies. I do have three children, but my youngest is nine, and so it doesn't make much sense to them. I've had psorraisis since my early twenties and that is an autoimmune issue which could also be having an impact

So far, plasmapharesis is not an option for me because I have had such a strong reaction to my donors I the crossmatch. The way it has been explained to me, it's the intensity of the reaction that determines if you can try desensitization. So I find myself lucky and unlucky....luck because I have so many loving friends who are willing to donate, and unlucky because none of them are a match! I am also in the paired exchange program with one of my brothers and one of my husbands sisters, they are both over fifty, and they recommended I get someone under forty, because some recipients I. The exchange specify they want a kidney under forty. Again, I have a wonderful friend who is thirty one who agreed to do it, and the day she was going to go in for testing was the day of the blizzard on the east coast (I live in New jersey). She is at a new job in a school district, so we are now waiting for her April break to go do the pre donor workup.

Also, we are going to baltimore on Wednesday to meet with a doctor at johns Hopkins for a consult. I'll let you know how that goes.

Sorry for such a long post. Lots of info!

Diane

Hi Polykid.

Sorry to hear of your problems with PD. I was thinking along the same line as Diane - that it might be a drain issue and you may not be draining all the fluid out because of a blockage (fibrin?) or pockets of fluid trapped. Constipation can be a BIG problem in PD (affects the drain) so if this is an issue some mild laxatives might assist but check with your Doctor what you can have. I was prescribed buckets of lactulose when i started PD for this reason!!

I remember a poster on another site mentioning a similar problem - difficulty draining and removing fluid. His problems were solved with a bit of heparin to dissolve the fibrin.

I do reabsorb fluid after a long dwell. If your body takes up the sugar the osmotic potential of the dialysis fluid is lost and you get some reverse flow. Unfortunately the sugar uptake can also lead to weight gain in some patients but this has not been my experience. I find that I have a very subdued appetite, probably from the constant supply of sugar.

Any large rapid fluctuations if your weight are most likely due to fluid retention and and not fat so your Doctor should keep that in mind before he gives you any grief about your weight!!