Some other thoughts on in person support groups. Many with PD have transportation issues which could make it hard to participate in person. Others with advanced cases of PD have trouble talking well enough to be understood. Some may be embarrassed by their condition. I know I find my drooling embarrassing. I would love to hear from those who found or started a good PD support group. I must admit that that after visiting one in person group I left feeling depressed as some of the people there were in such poor shape. I want to feel better after going not worse.

I run the local support group Young onset of Westchester and The Bronx. Through this group we have developed some great friendships. We meet once a month but have several social gatherings during the year. We participate as a team fundraising for the Parkinson's Unity Walk April 25th in New York City central park. We have open and honest discussions and no topics are off the table. We welcome everyone who is young at heart. I find it incredibly helpful to meet with others and benefit from their experience. If someone needs a ride we get them one. If there is no local support group where you live start one. You will be surprised how empowering it is to have a support group which shares with people to know you are not alone.

When we meet often we have guest speakers. We have had neurologists, tai chi instructors, DBS neurosurgeons and programmers ,films, dance instructors (Mark Morris School), and when there is no speaker we give everyone a chance to introduce themselves and talk about which meds they take, what issues they are having, what works and what does not, Which Movement disorder specialists are good and which ones are not. We have some members who can't walk or talk so well but we are understanding and patient allowing them the time to get their words out. If you can't be comfortable in a room full of pwp then where can you. Our group has grown steadily over the years and includes pwps and care givers. Any questions? best regards Alex