Parkinson's Disease Support Group

Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...

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peachybum 11/28/2012

I would dearly love to hear any suggestions on how to stay asleep.

So far this is me.

Try to go to sleep at around 10pm, have a sinamet cr 1 and 1/2 the low dose one, with a pain killer sometimes (ibprofen or neurofan , or aspirin) all over the counter low dose anyone can buy pain killers.

Wake within the next 4 or 5 hours tossing and turning , and being annoying to my poor darling Tom

Suggestions anyone?

Mine has been lots of wine or vodka, but that might kill me quicker than I wish

Help please

deleted_user 11/28/2012

Sweet Peach - I feel your pain. I can go to sleep fine but it's the staying asleep that's difficult. Also, if I have a rare margarita or wine, it always wakes me up during the night.

Does turning on a small reading light disturb the adorable Tom or maybe the tv ears where only one of you hear sound. They say you're not supposed to have lighting from tv or computers in bed but I find it eases a racing mind.

Only other suggestion sweetie is to NAP NAP NAP!

arwenmark 11/28/2012

you might try melatonin at bedtime taking with warm milk and you could try satin pajamas to make the tossing and turning easier. both those have helped my husband.

deleted_user 11/28/2012

Human growth hormone. 1 i.u. per day. Seems to help.

C

deleted_user 11/28/2012

Hi peachy i had the sam problem .So I rearranged my med schedule. I started taking first dose at 330 am and the adjust the time during the day. Lets face it it is easier to weit during the day than at night. But my med schedule is different from yours . i take medications 7x a day now i sleep better. Do to DBS I no longer take it at that early hr. that is the only benefit i got from it. Zlatica

peachybum 11/29/2012

Thanks friends , I have taken to rolling out if the bed when I get annoying and sleeping on floor , strangely comfortable , although my darling Tom feels sorry for me . Will try melatonin I know it works for my friends child . Can't mess my poor. Brain up anymore than it is I guess . Love to you all for caring xxxx

beekeeper42 11/29/2012

Are you properly wearing your body out during your waking hours? Hate to bring up the e-word. I get flogged with it by loved ones all the time... and they are right. Exercise helps burn off the surpluses of chemicals that our cave-dwelling ancestors needed more than we do. As I tell you this I am reminding myself.

Of course, the occasional margarita helps, but it can get habit forming. Me? I prefer dark rum.

Beekeeper

peachybum 11/30/2012

Mmmm beekeeper , I am still working , my job is mostly desk based , computer . I walk on weekends , and guilty of nothing during the week due to busy job

deleted_user 12/02/2012

I also know how you feel. On an average of 3 hrs a night and getting very worn out. But after 3 yrs you would think I would be getting use to it instead I am a Grizzly Bear.

deleted_user 12/09/2012

Peachy,

Know how you feel, I hardly sleep at all.

Tried Melatonin which I didn't find to be any good other than if you have restless legs it is known to agitate this - great!

Now on Gabapentin 300mg, fingers crossed it seems to be working a bit although I need a bigger dose for it to be effective. Might try your wine and vodka regime over Christmas as like BD I am a bit grizzly at times, not that I would admit that beyond the group lol!

Best of luck

Julie

bcbid68 12/09/2012

Here is a the top 5 foods to help you sleep....

http://care4yoursleep.com/top-5-foods-for-good-sleep.html

deleted_user 12/15/2012

Am averaging 3 hrs a night. Oddly, when i do manage to sleep longer than that, i wake up exhausted!

bcbid68 12/15/2012

Out of curiosity I tried eating banana's to try with sleeping. I must admit the last 3 nights I ate a banana about an half hour before going to bed,. And I've gotten a good solid 7 hours.

PSullivan 12/17/2012

peachy i resorted to sleeping pills but didn't like that at all... lately if i wake up i put the headphones on with soothing music.. that seems to help.... good luck to you.. paula

peanutzz 12/23/2012

Beekepeer thank you!!! A good workout and a glass of wine. That's what I do for my Mom and have gotten locks of flack for it. "dont give her alcohol" Yeah take away her happy hour and I've got a shaking anxious parent who is now being treated like a child. :(

Joanee63 12/28/2012

I wish I had a good answer for you but I don't. I sleep about 3 to 4 hours a night and that is with taking Gabapentin and lorazepam.. Can't imigine what I would be like without those 2 drugs
Joanee

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