Andy,
Welcome to the group and I'm sorry you have to be here. I was just diagnosed in January, so am new to the group as well. But they are all very supportive and all have different knowledge and perspective. I take one med once a day at bedtime, and am coming off multiple other drugs for other chronic conditions, and actually feeling pretty well. I do recommend a book Johns Hopkins publishes, titled "Parkinson's Disease (2nd Edition) A Complete Guide for Patients and Families."

It's not scary, nor overwhelming and written in a way to help you get an overall picture of what is PD and what is not. It also has a great index for referring to something a second (third, fourth, fifth...) time. Keep posting and keep reading. It's a blessing.

Annie

Hi and welcome to DS. Many of us have experienced what you are going through. We share our stories and listen to each others milestones, challenges and set backs. It is scary but with the support of others you can find some peace or understanding. Many of the symptoms on your list are common parkinson symptoms.

I am 49 years old and have had PD since my early thirties. I am stable right now and have recently returned to work after 4 months off. My medications have been stablized and I feel well.

You may feel that your symptoms happened rapidly, but often there were minute changes that you don't really realize. Every one is different so it's hard to say how fast or slow it progresses.

Keep an open mind, get plenty of rest, have a positive attitude and get moving and exercise. Having someone to talk to and to share your feeling can also be a big help.

We will be here to help you along on your journey, you are never alone. Welcome!!!

I cannot thank you both enough for your thoughts. It has already made me more comfortable with my condition. This is all so new to me and I am mostly concerned as there is no outlook as far as what other symptoms and how severe they may become in the future. It is the not knowing that bothers me. Again thank you for the kind replies.
Andy

Andy,

Glad you found us. I expect you will find connections and information you glean here to be helpful. We are an odd lot of PD-afflicted. You will find people here to be like people facing such challenges anywhere: sad, elated, blue, content, determined, grumpy, tired, sore, and glad to be alive. The common thread running through the group is we care.

If you have not found out already, our common infirmity is not the Parkinson's of our grandparents' era. Hang around here and you will certainly read how diagnostics, meds, therapies, treatment strategies, and self-help programs have changed enormously.

Welcome!

Beekeeper

Andy , you cannot think like that, you must take day by day. There be good days and a bad ones , We have no control over them. Just do the best you can. that is any of us can do. What will come, will come , no sense to fret about that. First thing happen to me ,when I learn I had a PD I stopped sweating the small stuff and concentrate on being happy. Doing the thinks I always wanted to do but did not find the time to do it. Now I have the time.Believe me, PD is not the worst think happening to you,You can live with it. There is worse thinks, cancer,
lung disease , liver, kidney or heart disease.Should I go on ?
What you experiencing is PD symptoms . The nausea is from the meds. It will go away and you will feel better. You will never feel the same again,like when you were healthy , but you will feel good enough to manage. Do your resurge , learn everything you can,knowledge is power. In time you learn

to live with that and when you get in a dark place , come to DS we'l
be here to help you. God be with you.

Z

Knowledge is power. And a sense of humor is essential. Your going to have good days and bad days. Don't let Parkinson's steal your life. I do Tai Chi and other types of exercise. Which I don't believe how well it works, Just google it. There are several web sites on the subject. I've had Parkinson's for 9 years. And was using a walker. I just use a cane now, and rarely need it. Stay strong.

Andy,
I was diagnosed at age 67, which was 3 1/2 years ago. My worst symptom so far has been the fear of the disease, causing sadness and anxiety. So far, have had no progression. Daily Strength has been a great help. Really does help with the loneliness. Have met a lot of wonderful people who are very willing to help. You have discovered a good support group.

The best advise I have is stay away from the internet snake oil salesman and those who swear they have the cure but the government is threatening them. They only want your money. I am your age have been DXD for 4 years now. Yes the road can be bumpy. Don't give up and you have found a good group of folks here. Also we are glad to have you in our group. Learn all you can and believe me all your emotions are normal. You will learn to cope as the days go by.

Hi Andy, So glad that you found us. Your opening comments to the group represent a place in time where we have all been, at our own speed and inclinations, as, like the disease "presents" itself in so many different ways. /oN two of us are alike, neither is our PD. I often refer to PD as "the designer illness", because we are all so very different. You have a right to be fearful of being diagnosed with an incurable illness, but once the thought sinks into your head, you'll put your "I'm okay" hat back on and go on with your life! BTW: I've been living with ole man PD on my back now for 38 years. I was only 32 yrs old, 1976, when my symptoms first appeared to me and the rest of the world. A very distinct tremor and odd splaying of the little finger on my left hand,

Like I said, you're in the right place my new friend!

Regards, Jim Evridge "AKA:SILVERFOXX_FIGHTING_BACK"

Andy welcome to our club. One of the more important issues is to have a neurologist who specializes in PD and movement disorders. Your run of the mill neuro doc just does not have the tools to help you effectivly. Learn as much as you can. Find a local support group. The effect of being in a room full of people who share diffefrent versions of the pd reinforces the idea that you are not alone. Keep on doing the things you enjoy. Good luck and good health, Alex

Welcome Andy, Everyone here is very kind and helpful. It is a scary diagnosis, but try to stay strong and positive. Surround yourself with those who love and support you.

Hello Andy, PD is not the end of the world. When I first heard that I had PD I was in shock but with God's help and those close to me, I now know that I am not alone in this. I stay away from stress as much as possible and that helps a lot. That includes my dreading PD and worrying about it. I have decided that I am in control of my life and not PD. You will make it. We are behind you.