Dear Drheart what is the website?

Hi judoguy,
I have been taking azilect for over two years now. I take 1mg a day which is the optimal dose. I have no idea whether it is doing me any good or not but I take it as I was told it was a neuro protector and would help preserve what is left therefore slowing down progression. Although I don't like taking pills, that sounded something worth signing up to. Sorry can't help with the other drug. I know it is nerve-racking starting or increasing meds, it takes a while to settle, hang in there.

Take care

Julie


By the way DrHeart, could you please tell me how I could see the blog you up? I am not at all technical and couldn't manage to get anything.
Thanks

I have been on Azilect for two years. A year ago, my neuroguy wanted me to see if Amantadine made any improvements in symptoms. Most decidedly it did not. B/P became very labile and unpredictable, sense of balance deteriorated, vision got goofy. After a week I stopped and informed him. None of my symptoms have changed in the year since. No more experiments.

Beekeeper

You guys are making me want to go dig my old pills up and try them again. I took it for hmmm 6? years and had big time swollen purple ankles and did end up with sun damage to that area--I think they tell you to stay out of the sun. I took 100 mg 3 x a day, sometimes 2 and ended up taking myself off of it. I have read WONDERFUL things about it lately and I think it should be used more often. I AM SO SORRY for those of you having bad dreams with it. My D.O. let me call the shots and choose my own meds, and I was really happy as it delayed using the ugly drugs for when there was no choice. VERY happy with my decisions. I take one prescribed drug and am ALWAYS trying other things, currently dhea and Growth Factor 9 (amino acid blend) I think it increases hormones and promotes the production of HUMAN Growth Factor. I will let you all know how that goes. I still do my herbs too.

I think you are talking about the Amantadine, right, WeWillWin? The azilect you only take 1 pill a day at the 1mg size or 2 a day at the .5 mg size. Or sometimes people take 1 pill at .5 mg a day. I have been taking azilect for 3 years now. I was diagnosed with stage 2 and I am still in stage 2 (I think). Sometimes when my meds wear off I have the cogwheel and a little tremor on right side (non-pd side). So I guess the Azilect is doing what it is supposed to do. I will let you know in a few years. LOL

As everyone knows (because I complain about it all the time) for the past year now I commute to NYC. I take the Azilect in the morning 1 mg. When I commute I have to go down under the Hudson tunnel, up the steps from the tracks when we get to NY Penn then up and down stairs to go underground for the subway tunnel. Then I have to go up 49-50 steps escalator and then up 18 steps out of the subway stop. Well I am constantly dizzy, sometimes I have to just stop and wait to steady myself, fearful of fainting because of the low blood pressure. I read that drinking water helps and I always have a bottle of water with me and it helps so that the dizziness is not so intense but I still have it. My dr. said not only does pd cause low blood pressure but so does the Azilect.

Well, when I have been on vacation this past year I noticed that I am never dizzy in the mornings. I am taking the Azilect but not the commuting. So I now know it is from the going up and down in the tunnels and stairs. So last week I decided to take the Azilect at bedtime instead of in the morning and see if it helped with the dizziness. Sure enough it has. Since taking azilect at night I have been dizzy on my commute only a couple of times in the morning.

I am so happy about this!!! It took me a whole year to figure out.