I remember that discussion Peachy. I think I brought it to my mom's neurologist's attention and he looked at me like I had 4 heads.

I'm sure it's worth looking into further......I just may do that.

Love you Mel, x x

Hello is their anyone out there?????? Yes please Mel can you research for me :)

Hi Peachy,

Found this site:
http://www.ehow.co.uk/l-glutathione-side-effects/
It does'nt just talk about side-effects but everything.

Found this Release in NPF site
Whats Hot in Parkinsons Disease?
July 2009
Glutathione Fails to Demonstrate Significant Improvement in
Parkinsons Disease Symptoms in a Recently Published Trial
Michael S. Okun, M.D.
National Medical Director, National Parkinson Foundation Dr. Robert Hauser and colleagues at the National Parkinson Foundation (NPF) Center of Excellence at the University of South Florida recently put a highly controversial drug of interest in Parkinsons disease to the test. They carefully performed the first randomized double-blind, placebo-controlled clinical trial of intravenous glutathione therapy in twenty one Parkinsons disease patients. The therapy was well tolerated but there was no significant improvement in any outcome variable.
The National Parkinson Foundation has for many years received a large number of information requests on whether intravenous glutathione therapy works in any positive way for Parkinsons disease. Glutathione acts as an antioxidant, and has been found to be reduced in the brains of patients with Parkinsons disease.
Some doctors have chosen to offer a fee for infusion of glutathione service. It is important for patients to be aware of several important facts about glutathione therapy: first, there is a lack of evidence it actually works; second, the therapy requires an intravenous line which has both short and long term risks; and finally, insurance does not cover the costs of this therapy. There is a clear message for patients and families in the Parkinsons disease community regarding this drug. At this time there exists no compelling evidence that intravenous glutathione results in any meaningful clinical improvement in Parkinsons disease patients. Patients should beware of any medical practices offering a fee for glutathione treatment of Parkinsons disease.
The Hauser article appeared in the journal, Movement Disorders:
Hauser RA, Lyons KE, McClain T, Carter S, Perlmutter D. Mov Disord.
Randomized, double-blind, pilot evaluation of intravenous glutathione in Parkinson's disease. 2009 May 15;24(7):979-83.
*A letter to the editor of Movement Disorders concerning the appropriate interpretation of the results for patients has been submitted by Dr.s Jankovic (Baylor), Lang (Toronto Western), and Okun (University of Florida)

Keep us updated. Debbie

Thanks Deb appreciate that article. I will read today when lm at work, doing nothing

PD daughter , Peachy and all you other participents in this discussion, i say that if a doctor looked .at you like you had four heads when you mentioned this to him, it is probably worth looking into it further. After seeing so many doctors after the last few years, there is not one that i completely trust and some of them just really don't care.And when they
plug into that arogant manner they can get, i'm done!!!!

Joanee
PS: you don't have four heads, PD daughter

Thank you Joanee, I appreciate that! I totally agree with you. Some doctors are on "robot mode" so much, they don't know how to think out of the box.
I am going to do some more searching. It's too late for my mom, but that leaves about a gazillion other pd patients who could use a huge break.

And love you too PeachyGirl... xo ;-)

Your totally 100% right joanee. I was trying to explain that attitude to someone the other day. I think Doctors see our conditions all the time, and become very immune to what we say and our concerrns.

Its because at the end of the day they dont go home with pd, and they dont know how it feels.

I will always keep on looking for alternatives , no matter how strange they might be, because you never ever know what might work.

@ Mel, you are such a great person, to still be here caring for us big smile always from me when l think of you still here

That description "robot mode" is so right on ! I also agree about the dr attitude, they love the box --- it is a safe place for them. I have thyroid disease too and they are totally off in space about that. There is no research done on it and everyone should take their pill, shut-up and just get lost. It is a terrible disease too and drs could care less if the treatment they give you is right or not. Most don't even do the right tests for it.

So there are so many suffering from diseases as all the drs prance off to their conferences to play while they learn nothing. It is the patients that are learning about diseases and the drs that have the four heads !

I've been here long enough to know what's coming next. Someone will come to the virtuous defense of "the doctor". And, I understand that.
But, I did want to head them off at the pass.......

Not all doctors are good,not all doctors are bad...just like any other profession. The problem with the not so good doctors being not so good is that how they are directly affects our lives.

My mother had one very caring PD specialist in the beginning. He was new at the Cleveland Clinic. She loved him and since I took her to every visit,I appreciated all the time and effort he put into her and her illnesses. And then he moved to another state.....ugh.

The last one she had just gave the impression that because my mom was in her eighties, big deal. Just get a wheelchair, take the meds, don't bother me with what you've learned on the evil internet. "I AM THE DOCTOR!"....of course, he never said that, but it was implied.

So, bottom line, not all doctors are jerks, but all you need is one and that's enough to ruin your outlook when you are looking straight into the face of a debiliitating disease like PD. We cant tolerate that. Not even one.
PeachyGirl, if I make you smile, then I'm smiling too !!

I guess anyone can come to the defense of "the doctor" but I have been on DS long enough to have read over and over how mislead so many people are. It happens in all diseases too.

That is amazing that your mom had such a wonderful doctor. My mom in her latter years had breast cancer surgery and the doctor treated her just like you said the last one treated your mom. He made a big pleat of skin under her arm and it was terrible, he did not care at all. So I guess after all the bad ones I have seen and the stuff my mom went through----I have yet to find a good, caring, doctor that really takes his job seriously and does not wear a crown 24/7. For heaven's sake some of those drs on the soap operas on TV are better than the real thing........LOL (cuter too !)

Always remember, some doctor's graduated with A's and some made it with C's and D's. not everyone of them is at the top of the class and sometimes you have to shop for service just like anything else.
My mom was in the hospital with glucose readings in the high 400's, she had PD, a pacemaker and diabetes and gloucoma. her cardiologist got called in at like 7 pm on a Friday nite. he comes sweeping in the room with a tux on and his cashmere overcoat over his arm and says "this better be good I'm missing a big fundraiser". I almost went over the bed at him. My dad put his arm out and stopped me and then politely took the doctor by the arm and took him out in the hall. I heard him calmly tell him "if you EVER talk to my wife like that again you will be in the bed next to her" he then went on to explain what was going on.
That doc walked back in the room and took her chart and was sweet as pie from that point on!
Bedside manner is not a given right when you get a medical degree. It's a learned art just like anything else.

Then perhaps they should be posting their report cards on the walls instead of their diplomas?

I'm disappointed. I can find nothing more than what Deb posted. Crap.