I definitely run a lot of low grade fevers...in fact when I was at the gastro specialist last week I was running a fever, and I didn't know it...although usually I do know it...I feel like I have a low grade flu..and it makes me miserable...and fatigued too...it's so frustrating!!! Sesser I'm so sorry about your recent diagnosis!!!!

WOn't offer any advice on diet as you can google a pancreatitic diet and get that online. Besides I often stray and my diet is still not the best. I do several small meals a day and take enzymes before each mean. There's no easy answer to any of your questions. I'm praying that you feel better soon so you can put in place a diet and exercise that is right for you. I am always fatigued. I rest lots. Then again I'm 69 and have had this 20 years give or take - I feel blessed that EUS and injections in nerve to pancreas relieve my pain.
Hugs to you. Hang in. You'll find friends here.

Yes, I always feel as though I have low grade illness. Never have a really great day but I'm beginning to accept that. I'm just happy when I get a fair day without severe pain. God bless.

Hi to all of you who shared the same problems with me! It's been a while since I last add my comments in here, I always forget my I'd and my password! I am Mama Lucy, 42 yrs.old, and had this chronic pancreatitis pain after they put my second stent through ERCP in October 8, 2008. My life was not the same again. How I wish I did lot's of research and joining in this group right away before my second ERCP, it could have save me from this painful chronic pancreatitis. This group has been so helpful to me after reading all the post in 2009. I have pancreatic divisum, and it wasn't bad until my second ERCP with stent. Over Three years ago I decided to eat despite of the too much pain that I experienced almost all of my waking time. I won't eat only if the pain is unbearable. And also, my sleeping pills (Lunesta), help me to sleep at night and I forget my pain, until I wake up again in the morning. I take Dilauded or Hydromorphine,plus opana 10 or 15 ml (oxymorphone 2x a day). It helps me for a short time though. I had 3-4 celiac plexus block before and it didn't work!! Sorry for the long story, and thank you for listening, hahaha! Praying for everyone who has this pain...

For those of you who are not feeling the worse pain yet, I would advice to read a lot of post before you will have an ERCP with stenting, it almost killed me and put me to the semi ICU for 10 days, and after that I am always in pain since that day. If only my pancreatic doctor told me to try taking the "CREON FIRST", I might not be in this situation that I am dealing with...ERCP is very dangerous for people like me because I am very sensitive to it! My doctor would not allow me to have another ERCP. I hope one day, doctors could come up in a better solution for us o that we will never be in too much pain again!! God bless!

hello
I have taken grape seed extract tablets for over 12 months now with NO pain
I eat what ever I like when I like
I dont know If its my imagination or they really work but im in no pain

How long were you taking the grape seed extract tablets before you noticed a difference? I bought some yesterday, could only find the swisse brand

Wanted to comment to Mama Lucy below. So sorry for all you've been thru. Really goes for all of you and myself. This is a dreaded disease but I'm learning as I read about meditation that we can do some things in the name of - mind over matter. There is huge power in BELIEVING. So I am going to start doing yoga and meditation to add quality to my life. If we believe something hard enough and long enough, they say we can make it happen. Well we'll see. I don't know if the person who wrote that ever had panreatitis or not! My biggest symptoms now are fatigue, low grade constant feeling ill and low grade pain that is manageable. Bless all of you who are fighting this currently in a greater way than I. Some days are better than others.

Hello Olmate, my husband both me any kind of herbs that supposed to be helping my chronic pain, and oneof that medicineis a grape seed. I tried twice though, however, it gave me kind of something in my throat after taking it so I decided to stop. I took turmeric as well, and the result is same thing. I am on "Creon 21,000 unit, 2capsule 3x a day, plus 2 capsule for snacks during the morning and afternoon. My pain is almost 24 hrs., and that's daily for the last 6 years. I am a totally disabled and will take high dosage of pain killers for the rest of my life!!! I hate what they did to me, if only they told us clearly that the worse that their talking about was for me to become worst after ERCP, would be worse pain everyday and night, I would not agree to get another stenting. It ruined my life, and the lives of my husband and our daughter. We could no longer travel and do more things together, because I am in too much pain in my pancreas a lot that radiates my spinal column and shoulder blades at my back. It was and still our worst nightmare to have this disease!!! Too bad, I could never work for the rest of my life... And will never qualify for disability since I didn't get enough credits for Social Security. I pray all the time for all of us...I hope one day, some doctor would find any solution for all of us who suffered this unfortunate illness. God bless and I'm praying for everyone to get better...

Don't ever drink alcohol and stay away from everything fatty. Watch your sugar numbers and research as much a possible. Ive had such a hard time figuring out how to live like this. I'm scared of evrything myself.
I had an EUS/egd in July and haven't been the same since. I was sick before but since that procedure I can tolerate little more than a liquid diet. Sometimes I eat some of the noodles and broth from chicken noodle soup. The EUS should honeycoming, stranding and atrophy and that indicated moderate to severe chronic pancreatitis. My blood sugar Have been on the high side but I have been able to keep it under control with out any insulin. I don't have oily diarrhea so my pancreas may look bad and hurt when I eat but it's still working. My local doctors are at a loss so I've decided to see a pancreatic team at Columbia Presbyterian in NYC to try and get the best of whatever is left of my pancreas.
Anyone else go there or see another "team?" I want people that really understand the pancreas. They want to do another EUS but I'm nervous. It's taking a ridiculously long amount of time recovering from the last one. Any and all suggestions helpful and sorry to all suffering!
Peace

Depending on how I am feeling I have fluids, then full fluids, then solids when I am in "recovery" mode. I recently had another attack and so I have adjusted yet again. I try to eat about half of my foods in a form that requires little digestion, carrot soup for example or other homemade fat free soups.

I recently have given up beef. I had hung on to eating lean beef occasionally because as a family it's hard for us to eat what I eat.

I do not have diabetes yet but I am conscious that can happen... unfortunately for me I eat a lot of carbs because they do not seem to irritate me, but I am pretty sure that this is not recommended for the long term!