Pancreatitis Support Group
Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be...
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Hi!
I am new here and am so glad to have found you all! I would greatly appreciate any thoughts you could share based on your own personal experiences with pancreatitis because I am at a bit of a loss. I have been to an internist for various abdominal symptoms, and have been told on both visits that it is chronic pancreatitis (although the tests are still ongoing and so far show nothing). I just don't think this makes sense and am wondering whether it could be IBS instead (or something else entirely?). Any thoughts would be greatly appreciated!!!
My symptoms are as follows, and come and go; lately they have been around more often, which is why I finally bit the bullet and went to see a doctor for it (no medical insurance):
-severe almost constant bloating where my entire abdomen goes quite hard (I am skinny and underweight, BMI under 18, yet it makes me look 6 months pregnant)
-stools that range from yellow to bright orange (as in carrot, sorry about TMI) and somewhat loose (but not diarhhea)
-mucous from time to time, often discharged separately from a bowel movement (sorry again about the TMI!!!)
-very sensitive blood sugar; get the shakes and irritable if I am not careful about remembering to eat every 2 hours
-pain from time to time, usually in my upper right quadrant; radiates to back...hurts but is NOTHING like what you guys seem to be going through, I feel so badly for you all
-nausea from time to time, no vomiting though...tends to last an entire day or a few days..sometimes it just shows up on its own, other times it happens every time I eat...sometimes eating a high fat meal triggers it either immediately, or the next morning when I get up
-wake up at night occasionally due to pain on the right side under my ribs; recently woke up because I swore I was having a heart attack; it was like someone had taken a metal belt and tightened it around my chest where my brastrap would be and was pulling it as hard as they could...I have an unusually high pain threshold but must admit had never felt anything like it...since my breathing didn't seem compromised I sucked it up, figuring it wasnt' a heart attack and after an hour or so it subsided (hope that doesn't happen again anytime soon...got very very close to dragging myself to emerg)
-a few times my entire abdominal area has felt itchy, but no visible rash
-it seems at times my face is a bit orangey...but not my eye whites...or am I just imagining this?
-sometimes I feel sick every time I eat, other times I feel fine
-symptoms improve if I cut out fat
-when I am going through a period with a lot of these symptoms, sometimes when I eat I feel the food is all just sitting there, somewhere around my back teeth maybe, and just not moving through my system, and I don't mean constipation, just somehow the whole digestive process has ground to a halt; in fact when I am getting alot of the symtpoms, my whole digestive system seems out of whack and everything starts being off
-I have to be careful to sleep elevated, or I wake up from coughing fits, which I suspect is GERD but I haven't bothered to have it checked out because keeping elevated at night solves that problem...probably should get a scope for it one of these days though...
-very tired a lot of the time
-I don't drink any alcohol at all, never have, nor do I smoke
The tests I have done so far have been bloodwork, which once showed slightly high (double) amylase and lipase (that was in May) but recent bloodwork (2 weeks ago) has been cheerfully normal except for calcium at the low end of normal, and very slightly elevated Rheumatoid Factor.
Normal CT scan.
An MRI is tomorrow (I have to fast after midnight...will be a fun blood sugar day...ugh)
The internist is absolutely convinced this is chronic pancreatitis. I am absolutely convinced that I don't want to have this and that the symptoms are not severe enough for it to be this, nor do I think that they match closely enough. The only thing that makes me hesitate is that my Chinese Medecine doctor (who treats my allergies) took my pulse and told me that there was something wrong with my pancreas.
Any thoughts on how to differentiate between this and IBS, or another abodominal problem, would be greatly appreciated! I am hoping not to bankrupt myself with a huge medical issue and maybe just have it go away on its own if I am lucky.
Thank you and sorry about this very long post!
I am new here and am so glad to have found you all! I would greatly appreciate any thoughts you could share based on your own personal experiences with pancreatitis because I am at a bit of a loss. I have been to an internist for various abdominal symptoms, and have been told on both visits that it is chronic pancreatitis (although the tests are still ongoing and so far show nothing). I just don't think this makes sense and am wondering whether it could be IBS instead (or something else entirely?). Any thoughts would be greatly appreciated!!!
My symptoms are as follows, and come and go; lately they have been around more often, which is why I finally bit the bullet and went to see a doctor for it (no medical insurance):
-severe almost constant bloating where my entire abdomen goes quite hard (I am skinny and underweight, BMI under 18, yet it makes me look 6 months pregnant)
-stools that range from yellow to bright orange (as in carrot, sorry about TMI) and somewhat loose (but not diarhhea)
-mucous from time to time, often discharged separately from a bowel movement (sorry again about the TMI!!!)
-very sensitive blood sugar; get the shakes and irritable if I am not careful about remembering to eat every 2 hours
-pain from time to time, usually in my upper right quadrant; radiates to back...hurts but is NOTHING like what you guys seem to be going through, I feel so badly for you all
-nausea from time to time, no vomiting though...tends to last an entire day or a few days..sometimes it just shows up on its own, other times it happens every time I eat...sometimes eating a high fat meal triggers it either immediately, or the next morning when I get up
-wake up at night occasionally due to pain on the right side under my ribs; recently woke up because I swore I was having a heart attack; it was like someone had taken a metal belt and tightened it around my chest where my brastrap would be and was pulling it as hard as they could...I have an unusually high pain threshold but must admit had never felt anything like it...since my breathing didn't seem compromised I sucked it up, figuring it wasnt' a heart attack and after an hour or so it subsided (hope that doesn't happen again anytime soon...got very very close to dragging myself to emerg)
-a few times my entire abdominal area has felt itchy, but no visible rash
-it seems at times my face is a bit orangey...but not my eye whites...or am I just imagining this?
-sometimes I feel sick every time I eat, other times I feel fine
-symptoms improve if I cut out fat
-when I am going through a period with a lot of these symptoms, sometimes when I eat I feel the food is all just sitting there, somewhere around my back teeth maybe, and just not moving through my system, and I don't mean constipation, just somehow the whole digestive process has ground to a halt; in fact when I am getting alot of the symtpoms, my whole digestive system seems out of whack and everything starts being off
-I have to be careful to sleep elevated, or I wake up from coughing fits, which I suspect is GERD but I haven't bothered to have it checked out because keeping elevated at night solves that problem...probably should get a scope for it one of these days though...
-very tired a lot of the time
-I don't drink any alcohol at all, never have, nor do I smoke
The tests I have done so far have been bloodwork, which once showed slightly high (double) amylase and lipase (that was in May) but recent bloodwork (2 weeks ago) has been cheerfully normal except for calcium at the low end of normal, and very slightly elevated Rheumatoid Factor.
Normal CT scan.
An MRI is tomorrow (I have to fast after midnight...will be a fun blood sugar day...ugh)
The internist is absolutely convinced this is chronic pancreatitis. I am absolutely convinced that I don't want to have this and that the symptoms are not severe enough for it to be this, nor do I think that they match closely enough. The only thing that makes me hesitate is that my Chinese Medecine doctor (who treats my allergies) took my pulse and told me that there was something wrong with my pancreas.
Any thoughts on how to differentiate between this and IBS, or another abodominal problem, would be greatly appreciated! I am hoping not to bankrupt myself with a huge medical issue and maybe just have it go away on its own if I am lucky.
Thank you and sorry about this very long post!
The one thing the CT scan found were liver hemangiomas but I have had them for as long as I can remember and they have been tested multiple times to ensure that they weren't cancer, so I suspect they have nothing to do with anything.
Thanks for sharing your suggestions!
Here is a link to one of many articles about what sludge in your gallbladder does or does not mean. You might want to read it.
http://www.everydayhealth.com/gallbladder/sludge-in-the-gallbladder.aspx
I am praying that you are able to get a proper diagnosis.
XOXO
I had a nasty night last night. I was really exhausted all day yesterday for no apparent reason, went to bed and then woke up in the middle of the night with stabbing pains in my right side under my ribs. It even made it hard to breathe. Wow. But I thought of all the advice that I have read in this forum, got into the fetal position and did my yoga breathing, and after awhile it lessened so that I could sleep again (I have a high pain threshold). This morning I feel tender in my entire abdominal area, and also sllightly nauseous. The other weird thing was that in addition to being tired all day yesterday, I was constantly fighting off low blood sugar all day too (i.e. hands shaking, dizzy, feeling like going to pass out and needing to eat something). And I had had plenty of food, in fact the first time it hit was in the shower right after I had had my breakfast. Does anyone else get low blood sugar with pancreatitis (everything that I read seems to indicate high bloodsugar)? And also I wonder what on earth brought this one, I have been SO careful with this low fat diet. This is all just so WEIRD.
Oh well, I'll add this to my list of things to tel my doctor tomorrow. I will be curious to see too if the MRI revealed anything.
Thanks again everyone and have a great Sunday!
My blood sugars goes way up when I have an acute pancreatitis attack. I am not diabetic, sometimes they say I am pre, depending on the month and the test results... don't know what that means. At any rate, when I have an acute attack they put me on insulin.
I would guess that that's the case with most people with pancreatitis. Your blood sugar going lower would suggest to me that you have something else going on hon.
If anyone has any thoughts regarding this I would love to hear them! :-)
Thanks and have a great day!
I just wish there was a clear sign that something like CP was going on, rather than this on again off again stuff.
And thanks again everyone for your comments and support!
Both are very high risk for complications and I have not come across anyone who has told me the procedures helped them in anyway. As a matter of fact there is a high risk that they could damage your prancreas more...
I am not a doctor. This is just my opinion based on the people I have spoken to and the information I have researched.
Please do not have any invasive procedure without researching it, knowing what the risks are, and knowing why they are doing and what the expected outcome is.
Also... get a second or third opinion before you move ahead... and don't get the opinion from a surgeon who is "cut" happy....
Anyways if you have any other thoughts on options for getting to the bottom of this I would love to hear them because this is so new to me. Maybe I should try going to a psychic! :-)
Thanks again!