Yes I am worried about travelling. I went to Morocco last September with a friend for a few days (I live in UK, so 3hrs flight for me) and I was so worried the whole time I was there. I had to get insurance to cover me but was worried incase I ended up in a hospital where I didn't understand the language etc, if I was going to an English speaking country, US for example I think I'd be less worried.

Its going to be difficult for you if you aren't going to be resting and your husband isn't too supportive, to be honest I wouldn't go.

Don't let CP stop you! Talk to your doctor ahead of time. Explain your concerns and ask for a plan. Many docs will give you a small supply of meds to treat the symptoms and a patient history printout or can save it to a desk for you- in case something were to happen and you have an attack while out to sea/ out of the country.
If you want to go with your husband, go. But let him know ahead of time that you have certain boundaries physically and he needs to respect that. If he can't, then I wouldn't go. You need to take care of yourself! And, if he isn't supportive emotionally or physically in general, there may be bigger issues to deal with. Good Luck!

save it to a DISK not desk, Ha.

afellowcpsuffer - my husband is Persian. He's much different than most typical american men. He carries the belief that a woman isn't his equal in a marriage, work, intelligence, anything really. So yes we have bigger issues but they will never be addressed unless i leave the marriage. He refuses to seek marriage counceling with me because he doesn't feel he needs it and me being a woman is not worth his time and effort. He says i need to accept my place and that's his bottom line. (you probably wonder why i married such a man. I can promise you that while dating he was the most loving, caring and doting person...he was head strong but loving...once the rings went on, he turned into what i now see is his father. Who is a controlling man and sees women as nothing) I never had the opportunity to meet my husbands father until a month before the wedding as he lived in New York at the time. Things are fine at home if I can wait on my husband hand and foot but when i'm sick and cannot all hell breaks loose. The reason i joined this site was to find information and emotional support because there is none to be found at home. I'm afraid to divorce him now that i've been diagnosed with CP as I don't know how i'd support myself if the worst happens and I end up on disability. It's so complicated that it would take years to put it all down in a post. Thanks for the luck and the advice.

Darbs - thanks so much for your advice, ideas and support. God Bless! xoxo

you are welcome hun. I just wanted to send you some cyber hugs re your situation. I can understand, my ex was of a different nationality to me and although he wasn't like that I can see some of his family and community are. I can also understand your reluctance to leave whilst you are sick. If ever you want to talk you know where I am. Big hugs, and if he really won't understand and expect you to do things physically you aren't up to then I wouldn't go.

Take care
Debbie x

yes, i constantly worry about traveling even in the city...transari hun you probably married him for the same reason i married my first wife "you know her the evil cruella on 101 dalmations" sure glad i am not with her diagnosed with this.. anyway i dont believe your second to men and i am dam sure you know your not second to intelligence either and you know how serious this disease is and you know what stress can do,
i do believe you can see where i am going here with this...goodluck sweetie we are here to listen, so you just ramble all you want

and "afellowcp" that is a great idea about the disk i am going to have my Dr"s office do one for me when i go to N.Y to visit my mom .. i am so dreading that

So sorry you are in that position. Keep a positive attitude as hard as it may be. Remember, your health is one things you do have the ability to control, or at least influence. So, don't cause yourself unnecessary stress and stay healthy!

That's a bad situation to be in. I hope and pray for the best for you. I have been in a similar situation although we weren't married...it started out wonderful then over time he turned into a monster. It ended with a restraining order and lots of baggage I'm still trying to get rid of. It's hard not getting the respect you deserve on top of this crummy CP.

As far as traveling goes it scares me to go very far. My last vacation was more like a weekend trip only 3 hours away because I was so scared of getting sick away from home.

I think the idea of having extra meds and your medical info from the doctor is a great idea...really even for trips to the ER at home when needed to help bypass the whole hypochondriac/drug seeker diagnosis...especially if you blood levels don't change any more.

Good luck with what ever you decide to do! ((hugs)))

Hello transari! We used to travel a lot by car and by plane, but now it seems it is so hard for me since my pancreas don't like the bumpy road and the plane turbulance. My last trip to Asia (Philippines) was very hard for me since we need to have four plane rides; 45 minutes from Indy-Detroit, 13 1/2 minutes Detroit-Japan, Japan-Philippines for almost 4 hours and from Manila to my province is about and hour of plane ride. Gosh, it was very expensive trip because I need to get a celiac block on my pancreas before the trip. Also I am very, very scared of flying and I was very lucky I've found zanax at that time and it help me a lot. I also carry dilaudid and phenergan with me since my pain is very strong most of the time. I also had a 2nd visit to the emergency room when I was in my country, lucky it was cheaper the the ER visit here in the US. So please, see your doctor first and ask for a stronger pain reliever and something for nausea before you will go on a long trip...Take car and God Bless!

Hello Transari, what I mean on my earlier post was hours not minutes. And that was a long and painful trip!

Hi, I'm new around here, but if I were in your postion I would go on the trip and enjoy a relaxing week around the resort!!! To heck with him let him go on some wild adventure and just soak up some sun! :)

Transari, I'm so sorry to hear that your husband treats you that way. That is heartbreaking.

As for the vacation I'm recently facing a very similar situation. My husband has always wanted to go on a tropical vacation with me, and he has been working his butt off for his big promotion the past two years (which he got) so, he has definitely earned it!! Well, then I got scheduled for my Total Pancreatectomy, and he is just terrified something is going to happen. So he put his foot down and decided we are going on vacation. It was actually very sweet, he wants to make sure we "have that memory to get us through."

Well I'm TERRIFIED! I insisted on all inclusive and somwhere with a beach, and I'm lucky he tries very hard to be understanding and accomodating, so when I told him I didn't know if I would be able to leave the resort he said that would be fine. I know it will be a different story once we are there and people are suggesting places to go and restaurants to eat at and I can't. But, I'm hoping and praying he'll be able to cope when the time comes.

Things I'm doing to make sure I can handle vacation: I'm packing food for the plane, I'm going to make fat free pancreas friendly snacks and a small meal to bring along, I'm going to bring along an empty water bottle to fill at the gate for taking my meds. We did get travel insurance. I'm packing a copy of my medical records (getting them on disk is a great idea!!-- love it!) Making sure I bring plenty of medicine, my heating pad, etc. etc. Still pretty nervous.. but, I feel like I need to do this for my husband.

I have to admit in your shoes I feel like I might back out and not do it. I'm so nervous about travelling WITH a supportive husband, but going with someone who doesn't understand just sounds like a nightmare. Prayers to you in this stressful situation!!

I want to thank everyone who has posted here. Your support and advice is greatly appreciated. I cannot tell you how much it means to have all of you in my corner. Peace and love to you all!!!