Osteogenesis Imperfecta Support Group
Osteogenesis imperfecta is a group of genetic bone disorders. It is one of the brittle bone diseases. People with OI either have less collagen than normal or the quality is poorer than normal. As collagen is an important protein in bone structure this impairment causes those with the condition to have weak or fragile bones.
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Not really sure where to start. My baby is 3 months old and is being tested for OI. He was born 6 weeks premature. We... READ MORE
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Sorry if this posts twice! It didn't show up so I am posting it again. Okay I've typed this a lot in a lot of groups... READ MORE
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My son, 15, was recently diagnosed with OI he had 5 breaks that were related to trauma. He is very active and is... READ MORE
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Hi! I started a Bbm channel for persons with Osteogenesis Imperfecta. If you are interested in joining it would be... READ MORE
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I have Osteogenesis Imperfect type one and I am pregnant with my first child. My OB knows little to nothing about OI... READ MORE
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Hi there,I'm 23 y.o., OI I type, female.Tried to find any information about OI and sex life. Nothing worked, except for... READ MORE
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http://www.scientificamerican.com/article.cfm?id=why-do-cats-purrScientists have demonstrated that cats produce the... READ MORE
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I was born in '57. I was diagnosed in '59(2 breaks too close). I got type l. When I was diagnosed there were only 4... READ MORE
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She'll be 6 months old next week. She was born with bilateral club feet and Erb's palsy (the nerves in her neck were... READ MORE
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I'm in my early 30s, and currently going through genetic testing for OI. Today my geneticist ruled out ED today which... READ MORE
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Ever wonder about the abbreviation A.S.A.P.? Generally, we think of it in terms of even more hurry and stress in our... READ MORE
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in school we are working on a project to improve genetic diesase awareness. i decided i would work on oseogenesis... READ MORE
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Being 24 years old and looking perfectly normal to the untrained eye..I find it is extremely difficult to get people to... READ MORE
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hi, i have had OI since i was born and it has made me shy. i was just wondering how i can make friends if im different... READ MORE
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HI everyone I am new to the group my husband has OI he has 50+ fracture since birth this is his first fracture in... READ MORE
