I am at peace, having the feeling that I may die in the near future, but am angry and frustrated at the same time! If someone has knowledge about heavy duty neuropathy, and has the compassion to answer this question, I would appreciate it. After 38 years of diabetes and poor care in my younger years, my body has taken it's toll. Is there a way of telling how much longer a body can take it with all of the diagnosis'? I know that's an almost impossible question to answer, but I am curious.

Have a good day:)

Im sory your been beaten by this awful thing.....can i ask do you have nerve damage at all?....ive been tested no nerve damage but i prickle all over..like periperal Neuropathy....can you have Neuropathy without having nerve damage?.im sure you can..im being tested for MS at the mo....best of luck to you...its awful Di...

Hi,
Yes I do have nerve damage from the neuropathy. I believe that you cannot have peripheral neuropathy without some nerve damage. The good news is if you catch it early enough, it can be reversed by keeping your sugars down and have good A1c's if you are diabetic. Yes it is awful.

hi, I was diagnosed with PN 5 yrs ago after suffering pain & numbness in my feet at first then my legs & hands. it hurts to stand or walk and I can see no relief other than a wheelchair in my future. (I'm 46). I was told it can be cured by drinking loads of water. Could his really cure it? Apparently it is just a build up of toxins? I also have psoriasis.

I'm sorry that you're becoming wheelchair bound, I'm starting to be getting there myself. I was originally diagnosed with neuropathy about 6 years ago. My doctor sent me for a test which found out that I had it. After the test (which I can't remember what test it was!) I was put on Gabapentin and was basically forgotten about. Up until about a year ago, my neuropathy was never really an issue. I'd get a little numbness and a little pain every now and then but basically that was it. It really was more of a slight annoyance than anything else. Well then last year things all changed practically overnight. All of a sudden I could barely walk, and I was in constant pain that wouldn't let up. I went to two different ER's which besides not even examining me were no help. Then, I went to my Doctor who was no help either other than prescribing Lyrica for me. So here I am getting worse by the day. And trying to explain to doctor's and other people exactly how you feel makes you sound more like a complete idiot. One of the best explanations about it that I've ever heard was "Walking barefoot in snow". Well good luck to you!

Hi guys,i suffer with widespread neuropathic pain due to a dysfunction in my nervous system,alloydnia,hyperalgesia,hypersensativity to touch, sound, vibration, pressure,Firewalker my heart goes out to you,when i started with neuropathic pain my gp said to me what your describing is nerve damage,there's nothing i can do, im not God & he just left me in unbearable excrutiating widespread pain,i was totally disabled,on another occasion i was taken to hospital in an ambulance,getting there was horrific,i was stood in a cubicle in excrutiating pain,a doctor walked past & came bk he said to me you look like your in terrible pain,i said i am,he said do u smoke,i said yes he said well ive no sympathy for you & walked off, he wasnt even the doctor coming to see me but still i got no help,the pain was so severe so widespread walking movement talking all infuriate the pain, i couldnt fight for help as i struggled to even talk, been left like this caused so much trauma it was the worst time of my entire life,that was 13years ago,then i got in with fantastic pain management specialists,Dr Dickson,Dr Baranidharan,medication & cortisone injections help my pain,im never pain free,but i couldn't go on without the help from these guys,you should ask to see a pain management specialist,or book a private consultation with one,i hope & pray you all get the help you need & if anyone ever wants to chat

No my neuropathy seems to be stemmed from my brain. My left arm and leg are effected. Now my right arm and leg have began to hurt. My right hand is partly numb now and my foot and parts of my right leg are numb and they tingle. Its a very hard disease to diagnose. It took them 2 or more years to find it.

I use mild muscle relaxers to ease the pain. Sometimes it helps pretty well. It relaxes the muscles that im holding so tight.

Hello Kathy I'm new to this site and recently was diagnosed with pheriphal neuropathy this is one of the most devistating this I've ever been threw I'm so sorry you will be in a wheelchair I myself am trying to adapt to wearing leg braces all the time now I have worn them in the past but did not need them all day everyday unfortunately I do you now wish you the best will keep you in my prayers it's just nice to know that I'm not the only person dealing with this

Please help, someone. My mom (age 67) has severe neuropathy. She recently had a spinal cord stimulator implanted in her spine to help with the leg and foot pain that took away her ability to walk -- almost overnight. We were hopeful she would regain her ability to walk after the surgery, but instead, she is now practically paralyzed by pain in her ribs and back. Docs claim this, too, is neuropathy, and they are not very helpful or sympathetic, unfortunately. Heavy doses of Gabapentin and pain meds like Percocet have proven useless. She cries several hours straight on bad days (at least 2-3 each week), begging to die. Her pain management doc said there is nothing else he can do for her. She's my mom! I just can't watch her suffer day in, day out. She still can't walk because she claims that her feet fee like there are pillows under them, making her unstable. She's also very weak. And she now has a dropped foot as a result of this condition. Of course, she has uncontrollable diabetes -- the culprit of these many ailments. Can anyone suggest any possible treatment? Is there any chance she can get better, or is this pain with her until her last day? I just don't know what to do or how to help. She's been an amazing, loving mom -- I can't let her suffer like this. Can anyone help, PLEASE?

Boxermama.... I'm 43 and have had small fiber neuropathy and many other conditions for 11 years. I too only have so far I can walk/stand... I used to be completely miserable, mad at the world and ready to die. I used to take lots of neurontin up to 4000 mg... The longer your on it and the more you take the more you need. I once thought I wouldn't be able to make it through the night without neurontin. But after years of trying everything possible I've stumbled upon more relief than a doctor ever gave me. It started with my GI doc that told me if I ever wanted a happy unbloated belly I needed to try the FODMAP diet. Giving up gluten seemed difficult but I felt better within 24 hours so I knew it was right for me. Giving up fake sugars and dyes reduced my pin pricks from over 800 a day to about 20-50 a day. But my overall pain, burning and limited walking didn't improve. I used to toss and turn all night from terrible aching in my spine and hips but I found several things to help me sleep. First I started to cut back on my neurontin cause I was just so exhausted all the time. I cut back slowly taking less and less and one night I somehow fell asleep without taking my neurontin and when I woke in the morning I was shocked that I slept better than I had in years. I never took another. I had about 3-4 days of insane paIn my over but after all pain level dropped substantially. It was crazy that although neurontin helped my nerve pain it also caused my overall pain to be worse.

My next improvement came when I started to consume flax oil and flex seeds (1-2 T of each added to a shake) I did it because it's a treatment for cancer (my dad passed last year, look up Gerswin cancer diet) and it helped reduce that dry achy pain in my spine, Then I got an essential oil diffuser in my bed room becaus thieves oil protects from illness (trying not to get sick cause I work part time in the school system) but it helped me sleep as well. Then on a bet with my daughter who is vegetarian I gave up meat and sugar to get her to give up sugar and in 24 hours I felt so much better again.... Its ridiculous how much inflammation was in my body. It so happened that I also didn't eat dairy in those 24 hours and a few days later I splurged and ate dairy and found myself using my cane again. Finally it just happened that about a week later I stumbled upon the movie What the Health on Netflix and that just sealed the deal. It explains how our diet is causing / exacerbating all the autoimmune conditions that many Americans are suffering from.
So it's a little difficult to eat a gluten free vegan diet but it's helped more than any pill a doctor has given me. I wouldn't suggest to go the route I did. Actually just the opposite, start the plant based diet and you'll find that you need fewer and fewer pills. So it's easier to get off them then sending your body through withdrawal like I did.
Two other movies that are good on Netflix are Fat, Sick and nearly Dead. And Forks over Knives.
I wish you and your mom the best of luck it sucks to be miserable all the time.

I'm in wheelchair too. I can only walk a small amount. I feel ur pain. It's a nightmare!