Narcolepsy Support Group

A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

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Sleep Disorders
/ Narcolepsy Support Group

Why I joined...

MysticPen
MysticPen

I just heard the most heartbreaking tale from a co-worker... the reason for his divorce.


His wife had H1N1 ... nearly died, became narcoleptic, got prescribed a bunch pills, acted cray cray. etc... 


Umm.... yea that was my ENTIRE high school years. I want to cry. I want to scream.


I feel soooooooo miserable for that poor woman (2 kids). Dad got everything - house and kids.


I want to slap him. I want to kick him. BUT no... I said nothing.


Well I did... I said that I got kicked out of a highschool and acted like a nutter too... back in the day, they gave us REALLY bad drugs. I totally humilated myself too... but I kept my personal opinions regarding HIS situation to myself.


I am sitting in my cube and I am trying not to be too (I dunno angry, confused, sad, ???) cause you know what emotions do to us, right?


Aaaaargggghhh!!!!!


I am so thankful for my husband right now. (Whatever happened to for better or worse?)

arfie
arfie
Hi, Mystic. Welcome to DS. It saddens me to say that this is a very slow-moving forum. I spend most of my DS time in the PTSD forum while I keep a distracted watch here in hopes of dialog, but it doesn't seem to happen too often. "Why?" remains a mystery to me, but hope springs eternal.

What emotions do to me is a BIG and confusing subject, especially when it comes to the divorce tales where "The Bad Spouse" could be me. Dunno what happened to for better AND worse, but I, too, am grateful for a husband who has stood by the vow with loving compassion.

So. . . What are the emotions doing to you? Getting a handle on them?
MysticPen
MysticPen
Emotions can trigger sleep episodes for narcoleptics.
MysticPen
MysticPen
...and I dunno about "bad spouse". There are kids involved... and crazy is crazy regardless if it was because of meds. Still, it felt very personal. When I went through the "let's try this med...now this one" phase, I was in high school. I did and said all sorts of things. I can't imagine living that down as an adult. It has to be rough.
arfie
arfie
My reference to the "Bad Spouse" is that every divorce drama seems to have one, according to which spouse is telling the story. But don't accuse me of objectivity on this one. Divorce tales are my least favorite 21st century story genre.

Lucky for me, cataplexy is not a burden I have to bear. I will nod out unpredictably in stressful situations, but it is not usually dramatic, though I do get a bit hyper trying to ward off the sleep.

And you?
MysticPen
MysticPen
Emotions tend to lead to me to losing my legs and arms, but only for a couple of seconds (enough to fall), and they make resisting the urge to sleep harder. So, I try not to get to emotional about things.
ChainBreaker4
ChainBreaker4
I was just reading this. I have been diagnosed over a year ago but still learn new things or have lightbulb moments. So, when I get extra stressed out I feel very weird. Like so tired I feel like I'm sleeping awake. Have any of you worried about looking drunk or something? I went to a family function where the kids were with other adults and I felt like sitting against a wall and sleeping. I felt so embarrassed. I wonder what you guys do when this hits you? I was to the point I thought about going to the bathroom and sleeping on the toilet for 15 minutes! Eventually I did explain my situation to someone and had them make me coffee, but I was so mortified!!!
MysticPen
MysticPen
Yep! Oh and people make assumptions depending on the venue. Sometimes I just let them go with it... Actually the assumption that ticks me off the most is about diet... since I am "obese" ... of course, these experts know that it's my diet. My doctor watches my A1c like a hawk actually (both parents diabetic) I am well "managed" - I keep it in the pre-diabetic zone. (Yea, yea... so once I let it get a little out of control 6.9 and almost ended up on a diabetic meds.... but that's the last thing I want. So I exercised and starved off 33 pounds and keep it off to avoid that hell.) I actually like it when people assume I am drunk at a party ( cause I won't drink - the last thing I need is a depressant running through my veins). I always tell people "I'm on a natural high."
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