I don't know about the pulsating, but cataplexy can affect people in different ways, can affect one person in different ways. For example, sometimes for me (depending on my degree of tiredness and the trigger of the C) I lock my knees up and I can lean to prevent falling over while I relax enough to move out of the attack. Other times, I fall right over. And again other times its as simple as my head feeling too heavy and needing to lean back.

What I can't figure out, whether its maybe migraines, C or something else, is why my extremedies curl up and I can't talk or walk correctly. Even people who barely know about it think it looks like a fricken stroke haha I laugh because I'm uncomfortable lol anyway... Not too sure, maybe its C, maybe not.

Thinking more about the pulsating, when I am concentrating on relaxing I can feel my blood pulse throughout my body. I kind of like it. Is it something like that? Or is it like throbbing, like pain? Sometimes that happens to me, especially when the weather is bad. My body throbs, sometimes in pain sometimes like it's going to be pain soon but isn't quite there.

Hope some of this helps.

I know what you are talking about, I used to describe them to my mom as "brain Blinks" and it feels like these waves, or pulses. They would make my eyes unfocus, my jaw would go slack, and I would feel like my tongue was trying to hang out, and like my whole mind was out of focus. That is cataplexy. I am on Celexa for my cataplexy, and this has almost cured me of it. It took only a few days after starting on the Celexa to notice a reduction of it. NOw, if I miss even one day of it, I notice the cataplexy. It may be that you need to try a different anti-depressant for the cataplexy. Using the right one can help with your narcolepsy symptoms, as well as help reduce the frequency and intensity of the nightmares and hallucinations. another anti depressant that really helps with this is LExapro. I tried Prozac, but that really intensified my EDS symptoms. I would recommend trying the Celexa, the generic is Citalopram. Try out 20 mg. and see how that works for you. It has saved my life, and allowed me to be more normal that I thought I could ever be. It won't make it so you can actually be fully normal during a comedy routine, but It will stop most of the everyday stuff. Good luck, and let us know how it goes!!

i think it is the modafinil ( provigil)..i had the same, and the chlomipramine too......... i changed to equazym ( ritalin) been on that for a while, it is much better, but getting xyrem on wednesday.so hoping the cataplexy will be more controlled too...........

I don't know if it's the same feeling, but my body feels like that when I'm really tired and I lay down. Kind of like I ran a mile and my blood is pounding and I get the spins. Do you have muscle spasms when you're falling asleep? Sometimes I get them so bad my calf muscles ball up. I'll ask my doctor and see what he says about it.

When a c attack is coming on or in the tail end of one I look drunk. I stagger and my face goes slack and my speech is slurred or gets stuck as I say like a stutter or I get stuck on the word "I" because I am trying to say I am ok but the rest of the words wont come out so I keep saying I, till I come out of it enough to finish the sentance. Some times I notice that my face will tingle or my whole head will feel numb and feel like its pulsing. No one can see this but its a really wierd feeling. I have never told my doctor about the pulsing though as I have not seen him in years. He says there is no point coming in because there is nothing more anyone can do about it. I dont mind its one less person I have to go see to get dissapointing news from.