Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
I recently seen my consultant Dr Reading at James Cook university hosital in Uk (may 09). He advised that they are HOPING for a cure for narcolepsy within 5 to 10 years. He told me they are currently doing trials on Debermans (who apparently suffer narcolesy...!!!!). I too live in hope.
During the time you took those drugs were you taking any oral contraceptives?
I ask because when I took contraceptives I was mean......I was really mean....so much so that when our seconed son was born my husband had no problems getting the snip......well not any until the day he went in for it.....but he still got it thank goodness!
My one question to you is if you have medical insurance. If you do, try Metadate CD and Dexedrine. The Metadate seemed to curb the "rollercoaster" (as I call it) of the up's and down's. My neuro said the Metadate helps extend the life of the Dexedrine so you're not just awake after you take a Dex and then an hour later, you're tired again. it worked well for me. I would start my morning with a Dex, followed up by a Metadate CD about 30 minutes later. Two hours later, another Dex, a Metadate around lunch time, and a last Dex around 2 p.m.
But the Metadate is EXPENSIVE. I had issues with insurance, and it cost me out of pocket, $300/mo. So only go on it if you've got insurance.
Good luck!