Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
I'm starting to realize just how much my ex didn't understand or try to understand about my N/c. I explained my N to him and he said that he understood to the best he was able. His "understanding" went out the window real quick. He had me getting up early, before 8am. Then we were going here, going there. Running around all day long without a break. Many times we wouldn't be home till late like 10pm and then I had to stay up with him till I just flat out passed out usually around 2am and it started all over again. I was so exhausted all the time that I was barely functioning. I started falling asleep while talking to people which is something I haven't done. He would get angry when I would arguee about going out to run errands and just want to stay home and sleep. He used to say that I just had to keep moving and I'd be fine. He wasn't the one who would start stumbling and bumping into things and have major brain haze where it was hard to focus. I just now got rid of the severe dark purple circles under my eyes. Now it's like I'm so worn down that all I want to do is sleep. I'm lucky if I can go more than 3-4 hours without needing a nap. I'm really starting to feel like the N is winning.
Sadly! My experience has been,you can lose everything and I have.
Understand,they are not trying to push you? they are trying to push away a disease. When they seem angry at you for not being Strong?
they simply angry at the disease.
One of the best things your people can do is to attend family counseling and learn all they can about it. This is an autoimmune disease . A disease like any other medical condition. if they were diabetics? no matter how much force or push to will power,you attack it with? will not make a damned bit of difference. Only medical treatment and change in life style will keep it at bay.
The old saying of I can't take care of you till?? I take care of me first. Is true. This may be tough at first for them but make them follow your lead. Get a tight healthy sleep hygiene, early to bed and early to rise. What works for me? and most people who want and do like felling better or their best possible. The sun goes down? you go down. 8:30p.p.m. ready for bed,9:00p.m. lights out. 4:30-5:00a.m. up and out side to see the sun rise. That's the way humans have lived for thousands of years before the invention of the electric light. ( unnatural! light.) Take your medication on time.
There's nothing after sundown? that can't be done during day light hours. if you need to nap? try to plan them .( I know this one is most times nearly impossible.) Have a nap. that's what we do!
Again if they want to help? The best thing they can do for you is to attend family counseling and to educate them selfs about the The Narcolepsy. Make them say it out loud! Narcolepsy,Narcolepsy,Narcolepsy. Some times saying stuff out loud keeps people from trying to hide the fact of it. Saying it out loud makes it real.
If you like to see the worst case of recorded Narcolepsy ever?
go to you tube, type in Narcolepsy and look for a guy named Muhammad- He's the guy with a U.K. accent.
Good Things and Good Luck.
Thanks again :)