ok so he just skirted thw issues realy, so baicaly he is saying we need to tell them every littl;e thing such as needing people in bathroom while have bath ect. well if thats what they want to hear then so they shall.
ty for posting that

I didnt really understand the PM's reply. Any one care to break it down simply (without the bull****) for me?

i think thats exactly what it is bull he is saying it will be de3cided on each individual case yet if we not able to walk wed get it basicaly

i came across this its in regards to DLA making a decision on claims its from 2001 , but i would pressume its still what they use,


NARCOLEPSY
Narcolepsy is a rare neurological disorder which comprises two main symptoms: sleep attacks and sudden unpredictable loss of muscle tone. Both symptoms are usually very frequent occurring many times each day and cause involuntary episodes of unconsciousness and paralysis. Some sufferers exist in a persistent state of jet lag; paradoxically some are very alert between episodes.
The fundamental problem is the inability to stay awake which causes paralysis and loss of awareness. This results in both transient motor and intellectual defect. These continue throughout life and in that sense are irreversible.
The condition is lifelong and does not remit. There are varying levels of disability in different subjects but in severe cases, despite treatment, a number of sufferers will become chairbound.
There is no treatment specifically for the condition. Any drugs used cannot address all the symptoms and side effects can and do lead to further serious illness and debilitation.
6 Issue December 2001
7 Issue December 2001
At best, treatment may partially alleviate symptoms on a temporary basis but cannot ever normalise the situation and cannot be relied upon in any situation. The best that can ever be hoped for is some form of therapeutic management which includes drastic lifestyle changes and use of class A drugs and knowledge of the fact that these episodes will occur frequently.
Narcolepsy is a very poorly understood condition, even within the medical world. It is frequently misdiagnosed and confused with respiratory sleep related conditions or epilepsy, or laziness. There is no disease relationship to any of these. It is none of those things. The pathology is now known to be neurological, centred on the hypothalamus, and research confirms there are at least two further major symptom areas those of autoimmune failure and metabolism defect.
It should be pointed out that although triggers for motor failure can include emotional stimuli, it is important to understand the concept that this is effect, not cause.
With no cure on the horizon, it must be accepted that narcoleptics will continue to suffer frequent episodes of unconsciousness and paralysis. Some may never be fully alert and some will be very alert between episodes.
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