Narcolepsy Support Group

A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

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On Xyrem 7yrs-now bladder control?

happyhappy
happyhappy
I have been on Xyrem for 7 years and it really helps me sleep (Nuvigil for daytime). Why after such a long stretch of success am I having bladder control issues? I know that is a side effect, but I never had it before! This is hard to handle and I can't even talk to my spouse about it yet. I have been able to hide it and don't think he really knows yet. I am faced with buying a product today...adult diapers at age 48? I don't think I can do it! Talk about depressed...Anyone else brave enough to tell me if you have issues?
happyhappy (That's a joke BTW)
IamMissingMyself
IamMissingMyself
I have not been taking Xyrem for long. I would be freaking out if that happened to me! I know it can be a side effect but maybe there is something else going on. Do you take your doses as 4.5 each? Does it happen during both doses or just during 1? Maybe try lower dose for one and after emptying bladder before both. You probably already know this since you have been taking this for awhile.

Have you talked to your doctor? I think if you reported that to Xyrem they would not allow you to continue.

I hope you can figure this out. I would hate that since it works. I can't imagine not taking it now that I feel so much better. I was having other health issues from not getting into a deep sleep for the last few years.