Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
hi i'm a 35 year old mam with narcolepsy, i was diagnosed 6 years ago. i managed to stay working til 3 years ago but eventually had to leave as my condition was worsening and my employer wasn't too thrilled about insurance issues. i now find myself 35 with two kids and unemployable. i have a wonderful supporting family especially an amazingly supportive fiance who wants to marry me next year regardless of my condition. i joined this support group in the hope of making friends who understand what its like living with this condition. it's still reasonably unheard of in england and sometimes you get sick of explaining what it is, but you have to otherwise people think you're being ignorant when you fall asleep during a conversation. i want a conversation where my opening line isn't "i'm sorry if i fall asleep on you but i'm narcoleptic!" i'm sure you know what i mean. look forward to chatting to you all, cally x
I am new to the site too and still in a daze about being diagnosed with narcolespy. I have only been recently diagnosed and its been a struggle to finally come to terms with it.
I find myself very lucky in that I only have a mild form of narcolespy. I am still able to work at the moment and taking each step at a time, as there are no quick fixes to this illness.
I have been suffering in slience for almost 4 years. Although my long term partner suffered the most I guess and couldnt cope with the excessive sleepy ness. I had been going back and forth the gp for 3 years when one gp suggested that i was slightly over weight and lazy.
my partner finally left and we are still going through the divorce. I had to move out of our home and struggle with daily work.
all this happened prior to being diagonised.
so i understand completey where your coming from.
tiny x
So, I retired from teaching. I have found the only type of job I can do effectively is one that requires me to be on my feet most of the time, and doesn't last longer than 6 hours unless there is a 1 hour lunch break instead of 30 minutes.