Narcolepsy Support Group

A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

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sleepystar24 09/28/2010

There are days where waking up and getting out of bed are seemingly impossible. On those days I wake up long enough to know that I should be getting up and out of bed but then I fall right back to sleep. It's almost as if I'm being pulled back into sleeping. This waking up and being pulled back to sleep will happen up to 8 or 10 times till I finally throw myself out of bed. But then I just feel like the walking dead. I have noticed that these days often follow what I call my "heart jumpy" days but not always. I just dont know how to fight it and get moving. If I have to hear my mother telling me that I just need to get up and move and I'd feel and sleep so much better and the nightmares would lesson I'll scream.

Thanks for listening, had to get all this off my chest.

deleted_user 09/28/2010

Ha! "just get up and move." Don't you wish you could have those people feel it for a day? That eyes open, fighting it, blinking, head heavy, almost painful, drifting in and out, not turning off the alarm because you know you won't wake up next time if you do? Assuming you could reach it and turn it off before passing back out in the first place?

EVERY morning is like that for me. Whether I have to get up or not. Which is why on the occasion I wake up and feel like I can get out of bed without rolling myself off the edge for the shock value, I get up even if its early and I'd rather sleep in.

I have sent some of the strangest emails and tweets during that period of the morning. Fortunately my friends and family seem to understand. Or at least enjoy picking on me enough not to mind.

deleted_user 09/28/2010

Mornings are hard, and lately I've had more headaches and had trouble waking up from naps. I know I need to take a nap now, I'm even overdue, but whether I sleep for 20 min or 2 hours it's gonna be like morning #2 and I'm dreading that. Oh well, I hear your noise, it's so hard to wake up, and then it seems like once you finally wake up your overtired and it's time to sleep and wake up again. I feel like time passes way too quickly for me. I know as you age time passes faster, but for someone with N who sleeps so much, time passes twice as fast. I can never keep track of what day it is, I honestly thought today was like the 22 of september, but it's almost october now, holy cow!

deleted_user 09/29/2010

I think having a hard time getting up in the morning is the hardest thing about N, for me. I'm a morning person and use to get up at 4am every morning. Let me sleep all day and be to "drunk" (not literally) to drive but PLEASE let me wake up and do my morning routine! If I can just do that I don't care to much of what happens to the rest of the day. But it has been a couple of years since I have been even able to get up at 5. Now I'll be lucky if I get rolling by 9 if at all. The only way I can wake up is if my kids or husband wake me up. My 9 year old wakes me up, then her 3 siblings, makes lunches and me breakfast, walks the dog then walks everyone to school. I couldn't survive without her. I see signs of N in my 7 year old too, it is SOO hard to get her up and going to school.
I guess this posting wasn't very encouraging, hopefully others have some good ideas.

deleted_user 09/30/2010

Hello! I can relate all too well. I have idiopathic hypersomnia, where it is next to impossible to get out of bed - even when I hear all 3 of my alarms going off. Once out of bed, I'm often confused and disoriented, and have held conversations that I later do not remember. Have you been checked to see if you have idiopathic hypersomnia?

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