apparantly there was a auntie over a 100 yrs ago who had this she was on my mums side, i dont get it i dont, the specialist said its not heredatary!!!!! so i dont know whats fact from opinion anymore. i do worry about my daughter she is 23 always tired, sometimes sleep more than me, she often has HH and bad dreams, and droopy eyelids when tired, i dont know if i am looking for N in her or she is just a normal, and i am totally paranoid!!!!! yeah probably paranoid lol, vonny x x x

My father has it and bad too but he will never ever admit it! I know I got this from him.
He refuses to go see a doctor for anything but he will sit down and fall asleep right away! He also snores super loud and stops breathing while he is asleep than wakes himself up with a big snort gasping for air. I have tried to tell him but he wont listen to me. As far as I know they think I am a nut case with the cataplexy. They think I am just looking for attention.

one of my sisters has dx of N, other sister not tested but i believe she does have it, my dad has it, at least 2 of his sisters too, and also a cousin on my dad's side of family is trying to get referred for tests, i suspect several more members of family including my son but he won't go to docs because he is 'too tired'.
Narcolepsy can sometimes be genetic but quite rare, only about 10% of cases.

My birthfather has it but leaves it untreated-- doesn't want the "ritals" so he self medicates with weed and beer. Lovely. I think his son (my biological half-brother) is developing it at 16/17 according to the aunt that raises him. I have read articles that say it may be hereditary. Gosh, pretty much everything the "bf" has I got.

Hey...
hello everyone
hi Hanna,I have 3 children and I am keeping a close eye on any sighns of my simptoms and crosing my fingers that they don't develop this N I have also asked my mother if she remembers of her family side having any particular symptoms and so sar nothing.I never knew my father so I could not say about his side of family.
Sheers Hanna

I believe my father and my oldest son (34) have N, but neither one of them want to hear of it. My father says he's old and suppose to be tired, my son self medicates with beer.

I think my mom may have N but she says she is just old. She can fall asleep anytime and anywhere. I don't know of anyone else in the family that has symptoms.

Hi Hannah. This is something that I wory aobut frequently.

I discussed with Dr Reading at my last app. I have not been able to locate anyone in either my mothers or fathers history who suffered or showed any symtoms...both my granparents are still live and my great gran was alive when i was diagnosed. He did say it only occurs in 1 in 2000 people, however once in the family our siblins have a 1 in 200 chance of developing N and C. I was diagnosed at 15, which is the same age as my eldest son therefore I am always monitoring and questioning him whenever he says he' tired.....so far no symtoms.

Hi Hannah

I have narc & cataplexy. Although he was never diagnosed my Grandad on my fathers side definitely had it. He used to shake when he laughed and he would sleep forever! He used to say he had sleeping sickness cause of being bit by a bug in world war 2! He died in 1996 when he was 76 I had not been diagnosed for long and my Nan would not hear of it that it could be what he had too! Maybe it was because everyone had been mean to him because he used to sleep a lot and he blacked out a few times when he was riding his push bike round London! I don't think my Nan could accept he had something wrong with him because of the way she treated him? He had three children & six grandchildren. No one else was lucky enough to get it but me! I am pretty sure I had it at school as I remember falling asleep in exams etc. Hopefully if not in our lifetime they may find a cure to help younger sufferers.

Out of my 3 sons, two inherited narcolepsy, the third has epilepsy. One of my sons who got narcolepsy has passed away. The other one, my youngest, had a lot of problems with it at least from the time he was in 7th grade (he's going to be 32), through high school, and he lost a couple of jobs because of it. Then it seemed to get better.

However, that happened with me as well, in the early years. I actually had some years that I had no symptoms at all, except mild cataplexy, and since I hadn't been diagnosed as yet, the doctors had no clue what was causing these 'episodes'

Eventually the EDS returned, as well as the other symptoms. (I have had Sleep Paralysis since I can remember as a child, and just accepted it. Thought my body just wasn't ready to 'wake up' yet.)

What concerns me is my son is in denial now about his narcolepsy. Says it went away. He is a Sgt in the Army and is getting ready to deploy to Iraq for the third time. When I told the sleep doctor he had enlisted several years ago, I thought the man would have a stroke.

I think what helps my son is that he is an adrenaline junkie. He is constantly on the move. When he's not 'working,' he's at the gym working out like crazy. He eats right and is in top physical shape. On his off time he races his 2009 Honda CBR1000 and does stunt riding. However, if he sits down (which is rare) to watch TV or something, he's gone. And you don't dare try to wake him up because he doesn't really wake up, and he gets violent, like he will throw something (like his watch through the bedroom window). Later he has no recollection of doing anything like that.

He's an adult and I have to step back and allow him his freedom to make choices. I just hope that narcolepsy doesn't rear its ugly head at a crucial time when he's in the middle of the war.

I'm not aware if anyone in my father's family had it as they are all long gone. My mother was an orphan, so no information there. Now I keep an eye on my grandkids. I worry about my 14 yr old granddaughter because she is a cancer survivor and her body has been through so much. I can't help but wonder if this makes her more susceptible to narcolepsy.

thank u all for replying , i am lost for thought lol , i am just worried in case my children get it , my son he wakes up early every day , even at weekends and he never ever lays about at all , but my daughter is the opposite, she is hard to wake up and the mouth on her in the mornings when im trying to get her up for school is unbeliveable, weekends she doesnt wake up till about lunch time , if i go in and wake her she goes sick at me , ive also noticed that she has nightmares quite alot , maybe im just making my self paranoid lol , i only started thinking about this when i watched that program on tv about my child wont sleep , they was a boy aged 8 with narcolepsy on it , and i truely felt for him ,having to cope with this at his age and for the rest of his life , we as adults all find it difficult so a child would struggle hard especialy with school work , i dont know may be i am worrying about nothing , thanku all again for replying :)