Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
I don't expect to be the "weak link" in the relationship, as in the case of a nurse/patient. I would hope to offer my various strengths to the relationship as well. Like yin and yang. I don't think learning how to be supportive of a PWN is difficult (at least in my case b/c I don't have cataplexy). I just think it's widely misunderstood, and if my partner can't understand, then I don't think I want to be with him. I have the fortunate (I guess?) situation that I am single and looking now instead of in a relationship with someone who doesn't understand and trying to make it work.
I feel it's our responsibility to educate as many people as we can to improve the situation all around.
I know a happily married couple where the wife has Crohn's Disease. I'm sure there are lots of couples where one person has a condition that highly affects QOL, but the couples keep on keepin' on. The difference is how the condition is perceived and the presence of accurate information.
Just because someone is legally blind, does not mean that he or she should date someone who is blind just because the other person can relate better than a seeing person--not that it doesn't happen, but there's nothing wrong with a blind person dating a seeing person either. Same with people in and out of a wheelchair, and I'm sure there are many other examples like this.
I guess it's a personal choice, and, honestly, if I ended up dating a PWN (unintentionally), and it worked out personality-wise, then great. The odds are slim that I will ever run across a PWN in my dating endeavor at all. I'm certainly not going to go to a support group and start asking people out simply based on the fact that they have N. "Yes, we both have the same thing wrong with us. Let's give it a shot." as if that's all you need to make a relationship work. I would consider it an insult. I am not just my condition.
2.in the words of forrest gump, i may not be a smart man, but i no what love is.
3. ido no definition of what it means to be a narcoleptic, make no mistake i'm the real deal. for a really long time close to 30 yrs.
4. i meant no insult towards you or any other easily offended pwns,out there. i tend to have that effect on people.
5. narc. is all about selfdiscipline ,and coping mech.and observation and knowing your personal limits with your own case in life.
6. this is why i come here , other peoples oppions a different prespective of life , and a little drama mixted in for kicks and giggles.
I also try to convey in my posts that I don't think I know everything. I certainly don't!
Well, I guess you said it flat out, that you fight against it. Sleeping excessively doesn't make you a better person. Truth be told, sleeping has absolutely NOTHING to do with who you are as a person...good, bad, or indifferent. And the problems you (we, us, most of us PWN) have with eating and weight control are tied to our condition and the destruction of the cells that not only control sleep hormones but hormones related to appetite control and metabolism.
No one can encourage that out of you. It's exactly what we try to explain to people all the time.
I'm not saying that those aren't the right things to want out of a relationship or that I don't want the same in general, but I don't think it's (uh oh, brain went blank...hang on, word will come) (okay, maybe it won't, picking a substitute) sensible to expect the right person to help you "overcome" your narcolepsy. Rather, the right person should help you be exactly who you are, to the best of your ability, expand your boundaries, but learn your limits, and that means accepting yourself and your condition, whether it's N, diabetes, MS, asthma, whatever.
All that being said, I certainly understand where having another PWN around would be frustrating and probably uncomfortable.
For me, I don't have an official "preference" either way. I would love to have someone who understands the weird little things I go through and who doesn't mind my napping and moods.
On the other hand, the odds of finding another PWN whose nap schedule is the same as mine are pretty slim. And who the heck is going to get all the housecleaning done? Dishes? Cooking? Errands? I don't want to be a burden on anyone, but I can just picture two of us on the couch, silently begging each other to get the energy to go make two bowls of cereal for dinner...