Narcolepsy Support Group

A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

694 Members
2,960 Posts
0 Online
Sleep Disorders
/ Narcolepsy Support Group

cold temp and joint pain

sleepystar24
sleepystar24
I was just wondering if anyone had any insight that they could possibly share. I've never had a problem with cold temps. I love the fall and winter. I normally would keep my fan going all year and even while it was snowing my window would be slightly cracked. Now however I get impossibly easy. It's almost like I'm always cold. The other thing, I've been getting pretty nasty joint pains. Sharp aches that just hit me. Its hit my ankles, knees, wrists, hips, and elbows. Is this just my weirdness or something else?

Thanks :)
deleted_user
deleted_user
Hiya i read somewere that narcolepsy also effects heat regulation and metabolism...its not only regarding sleep with narcolepsy..here is another forum talking about narcolepsy and heat regulation.

http://www.talkaboutsleep.com/message-boards/viewtopic.php?p=146958

also in regards to joint pain i put a post up asking about similar problems so maybe you can take a look at that ...i will forward what i called it if i can relocate it ...it was very interesting.
deleted_user
deleted_user
put in: Narcolepsy and muscle pain in the search above and it will bring u to the posts...in discussions....ort at the moment its just at the bottom of the first page but it may move
sleepystar24
sleepystar24
Hi Sleepinbeauty, i read the post on muscle pain. Actually i read all the post on that thread. Tha pains i get are strictly in the joints, no muscle pains, i dont even want to bend or rotate the joints when it hits.
The article on temp regulation was extremely interesting. it's def got me thinking.

Thanks :)
deleted_user
deleted_user
I had severe joint pain just like you described when I was first diagnosed with N and S/A. The joint pain disappeared after about a week on my bi-pap machine.Joint pain - a lowered threshhole for pain in general, can be caused by chronic sleep deprivation. My chronic sleep deprivation was cause by my S/A but there are many things that can cause sleep deprivation. Everyone who has narcolepsy has some sleep deprivation because we don't sleep "right"-efficently. Stimulants don't help with that.. Regular sleeping pills may help a bit but Xyrem is the only medication that actually improves our sleep. It alters our sleep cycles to something closer to normal-not normal-but closer. I kept thinking I had lupus or something else awful. Now I know when my joints start to ache again something is disrupting my sleep. I also think melatonin helps. Antidepressants that suppress REM might also help. Talk to your doc.
sleepystar24
sleepystar24
Thanks Marliynliz. I'm not currently taking anything to treat my N w/c. I have other health issues that prevent me from tolerating most of the daytime meds that help with EDS. I was perscribed Xyrem but I flat out cant afford it at $330 a month and that's with insurance. I'm going to set up an appoitment with my sleep doc and just talk about what my options are. There has to be something I can do or take to help.