You need to consider putting an end to driving. I had several bad vehicle accidents, and in some cases can't recall what I hit, where I was or even having been driving. I have also crashed on my bicycle in very serious situations where I broke my hand, elbow, and arm because I lost my focus and had cataplexy attack riding a bike.

Now I don't do anything unless I am a passenger.

I'm sorry to hear about the accident. You should really talk to your doctor about driving. Your symptoms were consistant with cardiac eppisode, It can be made worse by your N meds, but it is still your heart. Cutting your driving down to 10 minutes or less doesn't lessen your risk for it occuring again. It's not like N where you can decrease symptoms by doing short bursts of activity.

So some positive stuff. ...a pacemaker, if it would help your problem, is wounderful in so many ways. It is a fairly easy procedure with minimal discomfort and recovery time. A pacemaker can greatly reduce your risk for other cadiac conditions later. An untreated or undertreated condition of the heart leads to more problems later in life. Oh and I almost forgot, your heart condition can actually make you feel more tired! ...just what someone with N needs is to have more fatigue. One a pacemaker is in, you should be able to go back to your normal driving! (normal for your level of N symptoms)

it's hard at 24 but it can improve your life now and well in to the future. Many young people have pacemaker. Hang in there!

Thanks for the encouragement. Because of my heart I can't be treated for my N with any meds. The N makes my heart worse and my heart makes the N symtoms worse. I cant win. I'm trying to get in to see my cardiologist but he's at least 3 months out of slots to get in. I'll have to wait and see what he says. I just want some relief.

thanks though!

I was just wondering if you where drinking something right before this happened???? I know strange question but my dad has swallow syncopy this is very rear... he had the same symptoms. He had to have a pacemaker put in about 7months ago. Does you heart stop beating??? Good luck ! Hope to hear back???

No, I wasn't drinking anything. I set an appt with my cardiologist so now it's a waiting game till I get in. I'd put up with the pacemaker if it makes me feel better. I'm tired of the near passing out moments my heart causes.

Thanks!

Coming in a little late, but I also have a heart condition and N. For many of us, circulation is not optimum, which definitely exacerbates any cardiac problems. I have been fortunate in that medications have completely solved the problem and my cardiologist is hoping to be able to wean me off them without a return of symptoms.
It sounds like the problems are different. Although I have had symptoms like you describe, I do not have an issue with heart rhythm, but output and function. A pacemaker would be useless.
Hopefully, modifying your cardiac treatment will make a difference in how you feel overall, especially fatigue-wise.
As far as being 24 and having a pacemaker...I wish they could install a battery pack that would control my N. I'd let them plug it right in my brain if it meant only following up every year for a recharge and being able to live nearly symptom free.
Good luck to you...this is the most frustrating part of any diagnosis and treatment

also heart condition and N.

pacemakers can be very refreshing. had an exgf that almost had sleep disorder like symptomns, got dx WPW then pacemaker, felt so mucb better. now if only they would clear a narcoleptic brain pacemaker... im tired of not fitting into societies expectations

either way: a healthier work schedule (not 2:30am), safer driving setup (carpool!!) and less deprivation (find a way to get your sleep dear) will really improve your quality of life. i used to be a "go getter" before i realized thats not my calling in life lol. now im 27 and i enjoy drinking lemonaid, talking about politics, and lecturing teenagers any chance i can. elderly life aint so bad. so you knit? :p

(and ADHD-PI)

just read that your dr wont give you narc stimulants cause of the heart? uhhhhhhhhh........... your a narc without stimulants?!? wtf.... i... hmm... err... really? like you cant ever have stimulants? nuvigil/provigil, adderall, dextrowhatever? not even caffine? like... wtf... how can you function? u just gotta run on panicy adrenaline every day or something?

a narcolep without stimulants.... i cannot wrap my brain around this. can we ask the entire DS narc group if there is anyone surviving without stimulants? i really cannot imagine how this is even possible.

like i guess... if you get xyrem at night, perfectly dosed, maxmimize the next days energy... wake up... then time all your naps perfectly... you could hopscotch your way thru the day but it would be such a difficult balancing act. youd have do everything perfect just to function.....

eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee

(haha nodded off while typing. and im not deleting it.)

cant remmeber what i was saying... your really cute btw. just sayin. hope i wasnt talking about something important...

if i remember ill add nothing post :) god i cant wait to move into new house and sleep for 3 weeks straight!!!!!!!!!!!!!!!!!!

Aaron, my dear, you are a nut. Yee of no memory...I don't take anything. Maybe one coffee or 5 hour energy. And it is not because of my heart, although too much gives me palpitations, but because of the headaches.
And there are many of us dealing without stimulants for many reasons. Perhaps once the heart condition is under control, Pro- or Nu- vigil will be an option.

Well I do have a little better scheduel for work. I still work third shift but it's a lot less driving. No I can't have any stimulant of any kind. I will drink a pop with caffine if I have to but it's only as a last resort. I function on naps alone and that doesn't work all the time. I tried Nuvigil and it nearly hopsitalized me. I'm hoping that if they ever get my heart under control I'll finally benefit from some narc meds. I was perscribed xyrem buy flat out can't afford it, insurance doesn't cover perscriptions. Ark01, thanks for the compliment. :)