I think N is one of those illnesses that constantly condradicts itself.

You are always tired, no sleep is ever enough yet you are usually an insomniac. People often think you are lazy as you spend more time in bed than others but most of that time is trying to get some of that blessed sleep and it is still not enough.

Alot of us find we are more awake at night, I for one now sleep during the day as that is when my C is the worst.

It's frustrating not being able to understand why you are awake when you are screaming inside that you need sleep.

Information is the key I think and just talking to everyone on here.

if your a insomniac or falling a sleep all the time ..people think insomniac is another type of sleep disorder but it is also falls in the narcolepsy group..at this time son flunked 3 sleep test very little or no rem ..did no sleep much ..so hes been looked at looke theres nothing wrong with him ..except he needs to get to bed early ---poor sleep highgene(ms)

*so hes been looked at looke theres ***like

i think what they mean is the brain doesnt have the ability to stay awake.nor does it have the ability to stay .asleep..its like the on and off butten doesnt work.i spend all day trying to stay awake.10 rolls around and im wide awake.it seems like im trying to go to sleep but wake up every half hour give or take.finally around 4 or 5 am i can maintain sleep longer.the thing is i hate sleeping during the day.so i fight it tooth and nail.its when i fight it is when my cataplexy is at its worst.

not being able to sleep the whole night through is very common among narcoleptics. personally, i can't sleep more than 1.5 hours at night without waking up and being wide awake. i usually screw around for 15 minutes or so or read or whatever and then go back to sleep--sometimes with more success than others. my understanding is that narcoleptics hit REM sleep much faster and go through the entire cycle much quicker than do people with normal sleep patterns.

Friffy,

WOW you and I are so much alike. I too fight sleep all day long. I usually don't make it though. I usually take at least 3 naps, and on my really bad days I am just asleep off and on the whole day. But sure enough 9 rolls around and I am wide awake and ready to start my day. I make it until about 4 in the morning then can't keep my eyes open.

I fight sleep really bad too and that is when my C is at its worst as well. I didn't even know it was C until I told the doctor how bad I have been getting over the last month or so.

Since you sound so much like me I have to ask, when you fight sleep do you get really sick? I do. I get cold sweats, dizzy, I even passed out a couple times, but then I throw up and right after that I pass out cold for an hour or so. When I wake up I feel better and am ready to go for another couple hours.

My C seems to happen a lot when I eat too. I can't tell you how many times I have not been able to finish a meal. Stress too. Which right now my life couldn't be anymore stressful.

I hate the fact that people think we are lazy because they think we just need to go to bed and we'd be fine. Grrrrr

Take Care All and Happy Thanksgiving!
Kimmers