I haven't really except for just various forms of stimulants and caffeine, very curious though, what do you use exactly that has taken the edge off?

I take a homeopathic remedy about once a week. There are thousands of remedies made from natural substances and the trick is to match the remedy with what I call the state or what I am experiencing. Most people are in one state, with N we experience multiple states which are changing all the time. I see it as a twilight life, as I feel I live between sleep and being awake. So if the nightmares are dominating I will take a remedy for that and the remedy depends on what the nightmares are like and how it affects me, eg terror, anxiety, sadness etc. The remedy could vary, depending on how I am experiencing my sleep time. Or I may take a remedy if what is prominent is feeling overwhelmed with exhaustion and the feelings of hopelessness that I am not coping. There are a whole series of remedies which are made from drugs, like LSD, Cocaine etc (They have nothing of the original drug in them!) These have been the best for me, as my night time is like having a bad LSD trip. So by taking that remedy, the trips ease off. I have not treated anyone with N, but I suspect most of the effective remedies would be in that area, as N is like a drugged out state (Not being aware of things, memory loss, trippy nightmares etc) Each remedy lifts the state I am and makes my life easier, but it does not eradicate it. Most people come to homeopathy when all else has failed. I see our clinic as the last resort clinic! I could not suggest names of remedies, becuase it is so individual and every person's N, whilst we share symptoms will experience them and manifest them differently.
I am hoping that there are other forms of therapies which may also take the edge off, but I have not come across them.
I hope that helps..

we tried 2 Hawaiian faith healers and some religion person to get the devil out--so far the little burgers still in him--got to try something when your desperate--

When I was first diagnosed with narcolepsy I was being treated by a sleep specialist and after six months or so I switched to a neurologist due to the sleep doc coming across as nonchalant about my treatment. I stayed with the neurologist for about two years and despite that he was one of the most respected neurologists in our area, thorough and certainly not "nonchalant," I never really got very far in my actual treatment (although I did gain a more indepth understanding of narcolepsy) due to his narrow approach to treatment. Eventually on recommendation by my therapist I switched doctors again, this time to a D.O.

Needless to say it did take some time for me to warm up to the idea of a "holistic" doctor treating my narcolepsy and not a specialist, so it took a couple of months before I actually made the switch. I'm glad I did switch as hes defied all my expectations and I've achieved more progress with this guy in two months than I ever did in two and a half years with the sleep specialist and neurologist. I still take adderall, 90 mg/daily, but also take a couple of supplements that both increase the adderall's effectiveness and increase my functioning as a whole.

I take a thyroid supplement (natural, not hormones), vitamin D & K supplement and a folate supplement called Deplin. The thyroid and vitamin D supplements were given to me after a full blood workup was done to see how my body was functioning, something no other doctor thought to do. The Deplin was prescribed before these two to help me with depression and increase the effectiveness of the adderall, which has proven to be a far more effective antidepressant than any SSRI that I have taken by many orders of magnitude. My point of this is that a holistic approach to narcolepsy has proven far more effective for me than a standard approach and is in my opinion necessary for a patient to achieve optimum functioning. Keep in mind that this approach does not eliminate the need for medication like adderall, to put it simply it is a supportive approach. I'm not necessarily recommending that EVERYONE take this route as what may work for me may not work for someone else.

I take Carnofax which helps with the cataplex (but after a few months I get use to it so I have to go off of it for a bit), B-complex, Catnip for anxiety, 5 HTP to help sleep better. The pills help alot but I am still far from where I want to be. Since N is an autoimmune disease I have been researching diet and autoimmune disease. When I eliminate what my body is sensitive to my symptoms all but go away.....the problem is I don't have the energy to cook the foods that I can have. If I cut wheat, milk, sugar, and meat out of my diet and eat 75% veggies, and the rest whole grains I can functions- but it takes 1-2 weeks of eating that way to get my health back, I just don't have the brain power or strength to cook.

Thank you for your replies which have really helped me. Yes Doctors can be nonchalant. The sleep clinic I went to, the Doctor was simply arrogant. I think most people with N have a lot of knowledge because we are the ones who experience this day in and day out and we research anything which will help. Your holistic Doctor sounds good Andehtheguy. And yes it is hard to veer away from those who have all the expertise, but they do not have all the answers and they do not live with what we live with. To me it is important to try to find relief outside of simply taking meds, which are essential but I feel I have a responsibility also for my own helath and not simply to take the meds which are dispensed to deal with the symptoms.
Thanks also about writing about the supplements. I take 5 HTP and B complex which helps.
Sariah I agree that eating well is very important. But how sad that most of us simply do not have the energy to cook well. When I have some energy I cook up a batch of food. I hate giving my kids processed stuff but sometimes you simply have to accept that that is the best you can do. I feel at least 75% better if I eat wholesome cooked meals, but it is so frustrating not to be able to do that all the time. When I am really low, I eat whatever I can get my hands on and then my digestive sytem is out for days. But when I am going through a good spell I can cook and it makes a ton of difference. I have put on a stone and a half since having N. That is so depressing. There seems to be no control of what it can do to our lives at times. Even when I go through a month of being able to eat well, I simply can't shift the weight. This is not a pleasant side effect. Is weight gain the norm, I am guessing it is? Thanks again.