Hi hon
Have you tried trigger point manual therapy on your tight muscles? Are you officailly diagnosed with fibro and mps, if so my heart goes out to you, hard to deal with just one. You may want to look up trigger point therapists in your area. Also, I have had sucess with Myofascial Release therapy. WHat you need to do is find out what your perpetuating factors are, the source of your pain first.
I use pain medication, but beleive this "beast" best be managed by a multidisciplinary approach of medications, excercise ( swimming walking...) relaxation techniques ( diaphratic breathing, visualization) distractions /hobbies, warm eepsom salt baths, bodywork.
So you have had tirgger point injections? Perhaps research another dr..? What meds are you on?
Bodywork for me is crucial as it is getting to the source of my MPS, my structural and muscular imbalances. I have problems with my spine, pelvis, thoracic area and these muscular imbalances cause compensation and pain in my other muscles. That is what my bodywork works on. If I was just covering up the pain it wouldnt work.
I suppose if you were considering the SCS to help cover up the pain, that could work, as long as you were also working on what CAUSED your myofascial pain and fibro.
I dont know anyone that has one, and what I know they are like a large tens unit. Have you ever used the tens and had sucess with it blocking out the pain signals. Personally that would drive me bonkers getting a little zing from time to time.
Oh I now see about your meds. I take pain meds, and since you are taking 5 percocets a day, my understanding is that ibuprofin is included with the drug. Too much of that can hurt your liver/kidneys. I think it would behoove you if you asked for a long acting medication. I take oxy ER ( or extended release) every 8 hours 3xs a day, that way I have coverage all of the time.
hope i helped some

No offensive but it sounds like the doctors are doing more harm than good. All spinal procedures have some risk to the spine and you might want to find out the risk on your own (some doctors won't tell you the actual percentage and will down play it). It sounds like maybe you could try a type of pulse therapy, I have a physical therapist who works in the inconsistency department (I go for pelvic pain and conspipation(sp)) they put a small piece of plastic on the inside (nonsurgical) and they emit electric pulses through it (feels like someone is flicking you softly with their fingers) it really helps me.

I had see white light level pain and the combination of drugs I used were cyclobenzane (a muscle rexaler) naproxen (for the littler pains) and hydrocodene (for those jesus please take me now pain)

Hi Schlene,

I've seen discussions about spinal cord stimulators discussed over on the chronic pain board. I don't know if you posted your question there, but you might consider it if you have not. You could also do a search.

I hope you find the answers and the relief you need.

Tink

Thanks for the input you guys! I have tried everything you mentioned jessiesgut and still use some of the stuff like swimming, relaxation, breathing, distractions, and a hot epsome salt bath every night. I also do wear a tens unit and it helps a lot, it's just a light tingle and constant. I will post this on the chronic pain board, wish I knew how without typing it all again! I don't know how to do a search on here, or maybe you meant on the internet? I'll do that. I had a great body worker who did myofascial release and energy work but it was expensive so I had to stop, When ever I got worked on it hurt so bad, and sometimes it would make me much worse, especially PT, they push too hard and want you to strengthen to fast. Thanks again!
Schlene

How to do this without typing all your info all over again

Just go to support boards here on Daily strength, go to the Chronic Pain board, ( open in up in a new tab, in the same browser).
Highliht what you typed here , click and drag your mouse to highlight.
Hold down the ctrl button while clicking on the "C"
on the new tab where you have already opened up the Chronic Pain board, and clicked New Topic,
Hold down the ctrl button whierle click on the "V" which will paste the info into the thread without having to type things over.

OR

If you are not used to shortcuts, open up a new tab of daily strength with the same browser ( internet explorer, firefox...)
You should have 2 tabs side by side, one tab with the MPS board open, the other tab with the Chronic Pain board open.
Highlight your info that you first posted, go to the Edit heading, and click on COPY
then go to the edit heading and click on PASTE . trust me, it is easier than typing the whole post again.

xoxojess

Schlene,

I was suggesting that you search "spinal cord stimulator" on the chronic pain forum by using the search box below the last post. There are so many ads and stuff all over the screen that it's not all that obvious but you'll find it after you stare for awhile. :)

Good luck!

Have you taken the Activia 14 day challenge?
I had tried everything. The Miralax
Helps too and I still take it from time to time but one got me finally straighten out to some degree (still far from perfect) was eating one Activia yogurt every day. Now I only eat it every other day or so.
Since I have retired I have had time to fix salads and I think that helps too.
When you're in this much pain is hard to get a handle on these other issues. It takes so much energy just to get through.
Are you working? Do you have time for yourself? Time to just relax? I know when I don't get to relax and I feel stressed my pain will grow out of control. Everyone gave you good advice. Do you sleep well? I just wanted to let you know I'm thinking of you and praying for answers and peace.
Love pauli xoxo