birdmom you are so right. Dad asks his dr every time he sees her how much longer he has. She tells him the same thing over and over. As long as you want to live. If we stop the transfusions you will die. to date he has had probably over 70 or more and 3 units of plts. I am ok with his decision if it comes to that. I am still his baby though! always will be.

Poshshorty,

Both you and your father are very blessed. To have the peace that you feel is more rare than one would think.
I will always believe that it is easier to be the patient than the ones who love us. I wish you much strength and courage as you continue to support your father's decisions. As Birdmom said, there comes a time when we are ready to let nature take it's course. I don't know how we decide that, but I'm sure we will know when that time truly comes.
God bless Poshshorty. You are wonderful.
Sherry

thank you Sherry. I do try and yes it is very hard to know I am losing my Dad. We are very close and I think that is one reason I feel the way I do. I hate seeing him suffer so much. I hate seeing him be a shell of the man he was. I hate cancer! I know God is in control of all of this and when it is Dads time God will take care of it no matter if Dad decides to stop or not.

Dad stated yesterday to his grandsons and me that he feels his body has changed. He knows it won't be long. I have noticed changes the last couple of weeks myself but to know that he knows this is so hard. My daughter is pregnant and he told her good luck with your baby. She isn't due til April 1st. He is weak dispite getting 5 units of blood in a week. please keep us in your prayers.

Hey there poshshorty, First know without question that your Dad, you and your family are in our prayers. You all are truley blessed that you have been able to spend quality time together. So many times, like my wife's sister, our passing comes so sudden and with no time to say the things we want.

My family knows I have a deal with the Lord that I'm not smart enough to know if it will be Him calling or ole Satan trying to get me to give up so I can't be a positive influence on those around me. We all are aware that sometime in the future the time of "knowing" will come and through the strength we have built together along with our God, just as you and your family have done, we know we will walk through it together.

When he and God come to a conclusion, you'll know that with your strength and love to keep helping him, he will stand at the side of the best Father of all, to watch over you and be needing no more transfusions.

Your truley blessed to know his journey to come and be in the prayers of so many friends here in this group.

Mike

I didn't finish a sentence so ---

My family knows I have a deal with the Lord that I'm not smart enough to know if it will be Him calling or ole Satan trying to get me to give up so I can't be a positive influence on those around me so I'm going to fight for every breath I can get and trust in His call.

Mike thank you so much! I know I am very blessed right now. I just kind find words today. too many tears. thanks again for the prayers.

Poshshorty,

I wish there were some comforting words that could truly help. Just know that there are those of us who are praying for you and your Dad. Be thankful for each and every moment you have together and think of all the good times and not the bad.
God bless you.
Linda

granny thank you. I can honestly say I don't ever remember a bad time with my dad. I am 53 and never do I remember any bad about him. He is the most wonderful Dad a girl could have! I am proud to call him my Dad!

We're back - we've been watching and reading.

Poshshorty - keep up the faith. You have a strong group of supporters here and between them ...there's an abundance of prayers being said for you, your dad and family.

We miss Chris...you guys are doing a good job but from time to time...we just miss Chris.

Lou hasn't been feeling well again. Three weeks ago he saw his cardiologist and he wanted Lou to try to build up a little stamina. So he's been going to cardiac rehab three times a week and feeling just fair.

Today we went back to the cardiologist and he suggested we skip the stress test and go right to an angiogram to determine the extend of heart damage. With a weak heart ...he's really having troubles staying on top of the MDS symptoms of low energy.

His Hg is 8.9 today and the cardiologist scheduled him for two units of blood tomorrow to give him a good chance for a successful angiogram on Monday.

The last time Lou felt bad was the day of our annual Chamber golf tournament. Now, all this stuff is happening a few days before a big annual Chamber Showcase event with nearly 40 vendors and 200 attendees. Wish us luck!

Appt. tomorrow is at noon at our local hospital...they said to plan for 4 hours.... then 6 hours on Monday...

I think I'll make some fudge this weekend...it always makes me feel better...then we give it all away to our special nurses and caregivers.

Happy thoughts to everyone out there - enjoy the weekend.

PS - Chris would have loved seeing me get #1000 (hee hee hee)

Gayle & Lou Najera

Gayle my thoughts and prayers are with you guys this weekend! please keep us posted.

Although I was fairly new here when Chris was around I miss him too. Still hard to believe he is gone at times.

I've been watching the replies lately, and the numbers haven't moved all that much. I was waiting to jump on #1000 for Cap'n Chris, & guess what? Gayle, you devil, you did it for him! What a character this man was/is. Newbies, go back & read his posts if you want to be uplifted. He lived life on his terms to the very end.

Gayle, I'm so sorry to hear that Lou is not doing well. Keep us posted on results of his tests. Perhaps he has blockages that can be fixed. That was the case with my husband.

Posh, the signs are clear now about your dad. I must admit how envious I am that you have such a great relationship with him. You are truly blessed, & as Mike says, even more so to walk with him to this place in time.

birdmom thanks. I love him that's for sure. I did not have a good relationship with my mom and when she died I had so many emotions. I know how envy feels.

It looks like the transfusions have stopped working. Dad is no better after 5 units in a week. He has made it to his 6 months the dr gave him in april. I can't believe I am facing this now.

The hg has been bouncing between 5.5 and 9.7 for several months. The platelets have been on a dive from day one. They started at 105 and steadily decreased for 5 months down to 19. Now they have suddenly reversed the last few weeks have gone to 28, now 40. Any reasonable explanation while we await our next appt?

Dads blood test today. hemo 8.1...platelets 13 :(