Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
If you are generalizing, you will notice your arms, or legs getting tired from the work. Mowing the lawn for instance, I remember my legs gave out from all the walking, and I fell in the yard. So if you find you are walking slower, stop and take a break.
If you feel you are going into crisis, I would recommend getting inside, and calling 911, or a trusted friend/family member who has seen you this way. Try your best to relax, and take slow deep breaths if your capable of it. I know me personally I can't, as I breathe really shallow, but try not to panic. Panic will only make the breathing worse, and you can pass out. I hope this helps you bear, and please, be careful out there. :)
It is different for everyone. Just realize you often will not get a warning..you just hit the wall. With the breathing concerns, the heat and your remoteness, if you are not sure how your body will respond I would caution you from doing any yard work.
Bruce
I agree with Tesinato & Bruce. Please use caution with any exertion. There is no forcing MG's hand.
Larissa
Take care and have a good evening.
Bruce
I am an active gardener-not today-tapering and the first week is rough. I use the single breath count method (Links Group). My normal on a good day is just under 40. Usually when I am doing a lot of outdoor work it will fall to around 30 or just below. Then I stop, rest and if it recovers well, I may continue, if not, I call it. Stop in the shade and drink and rest frequently in this hot weather. Efficiency is not the goal and repetitive work is hard on us, so I pull some weeds, carry them to the compost, prune some branches, carry them to the compost, pull some weeds, dig holes for plants, etc. I do not plan to do all weeding all pruning, all planting at one time. Saves on repetitive motion injury as well. If you mow the lawn, mix it up with resting and other yard work, or do it over several days. Better to plant native trees shrubs and flowers so not so much grass and you can stop and watch the wildlife. b.
My how things change.
Treatment helps.
Ann
I eventually had to give up: the yard-work, lawn-mowing, house-painting, you name it. Even had to give up my own carpentry (a job I did for good pay, all my life). I now hire it all done, adjusting the household budget along the way (sold 2 cars).
I collapsed on 2 carpentry jobs, working in the summer heat. Hitting a wall, serious & deadly. in a timeframe - of no more than 1 hour (cue the EMT sirens).
There's that ''wall'', that Bruce mentioned.
(At the time, however? I was not correctly diagnosed, and was not receiving correct medical treatment.)
As my MG generalized - and stayed there? And as secondary autoimmune conditions came along? I declined to a point - where I could only handle 20-minutes of very-mild physical labor. A day.
With a correct diagnosis - and also with correct medical treatment? I choose to spend those 20-minutes a day? Doing a slow walk, 10-minutes each time. My Neuro says: that's the best exercise for me too, helping to prevent muscle atrophy.
MG'ers who recover better than me, with much better physical abilities? (also - under good medical treatment.)
They seem to be of all ages, with all manner of differing symptoms.
There are younger MG'ers - who are doing very poorly.
There are older MG'ers - who are doing very well.
The ''Snowflake'' disease!
- Ross