Hi Terry I fully understand how you feel. I have been struggling at work as well, I have the ability to work from home at times, but even with that its been hard. I work as a physicist (science geek) which is not the most physical of jobs but even with that, the 45 minute commute, the long walks between buildings and keeping up with the tasks does wear me out. I have not been able to work a 5 day work week in the last 4 months,

One thing I have found and did not fully realize is how much even minor depression can play a role in how we function each day. I'm not sure if you have or had talked about depression with your primary care doctor, but it plays a larger role than I would have ever thought, I have never had a problem with it in the past.

Recently I relented and started taking Wellbutrin and am amazed at how much that has helped, I feel better and have more energy. Not all AD meds give this type of energy boost but apparently Wellbutrin does.

I don't know if you have looked into this possibility but would encourage you to consider talking with your doctor about the possibility of depression. One thing I was told and did not realize is that when we are exposed to prolonged illness, stress or pain that some level of depression is highly likely to develop, it's just a matter of biology.

As part of the long term managment tools to live with a chronic illness I feel that the possibility of depression and appropriate treatments should be considered.

I hope you find the best solution that works for you Terry

Take care

Joe

The prednisone took about 3 months to work for me. I took it with Mestinon 90 mgs 4 times a day.. I had struggles with one eye closing when first diagnosed. I would rest my eyes for 30 seconds and open them until they closed. I got better for about 4 months then had problems with both eyes closing. They were very understanding at work. I do a lot of typing. I did miss one board meeting as I could not keep the eyes open and take minutes.

I am lucky that I am able to work even after generalizing.

I have been taking 1000 mg of Cellcept since the first of the year. I foolishly did not real the label as I should have been taking 2000. a day.

Now that I am weaning of the prednisone and down to 20 mg I am taking 2000. mg of Cellcept a day.

I am so sorry some of you are doing so poorly but wanted newbies to know there is hope. Some of us respond to medication.

I have no choice but to work. My husband is unemployed currently and I have the only income that is coming in except for the little amount that he brings in with unemployment. Sometimes I don't know how I do it. At this point I really struggle to make it through every week. My cellcept has finally kicked in a little and I do feel like my ups and downs are not as dramatic. I have my FMLA forms in place already and I have a handicap placard that I use when I need to and sometimes even if I don't need it to get into a place but I might fear that I won't be able to make it out of one unless I'm parked close. I don't use it if I know that I'm just running in and out of a building (okay, I don't run anywhere anymore).

I want to continue to work because I love my job and what I do, but some days I feel like I'm going to collapse and don't have the vacation time or sick leave to go home. I have no ideas about how to get through it but I'm hoping to learn from what others offer up here.

Thank you for bringing this post forward again. Big hugs to everyone.
Angie

Yes good to see this post again. Wow almost a year since I posted. My doctors off an on this years keep telling me I need to quit work. I like you Angie can't yet as my husband is on disability since 2008 I could go out on disability from work but we would have to find other living arrangements. Got a room to rent cheap ? Lol.

My husband is frustrated that I can't quit. I believe it will fall in place or by no choice.

I know we each have our daily struggles, prayers to all.
Annette

I'm glad to re-read this post. My post from last November stated that I was working from home part-time, but not talking well. I'm happy to say (and to myself too) that I'm at work full time. There's nothing more than that-no social activities , but I've made a lot of progress in 10 months. It's been a year since my thymectomy. I hardly take any Mestinon and I used to take 630 MG per day. I'm on cellcept and ivig. I still get tired,but I can work. I never thought recovery would take this long. And yet, now I know it's a lifelong process. I'm so thankful for all the great people here who have helped me so tremendously and continue to bolster my spirits .thank you. We all have to adapt in some way. I hope for hope, for your remissions.
Be well,

Just an update: I have been able to work full time since December . I have only had to leave work s couple of times because I didn't feel well. I sometimes have to rest all week end . I have I take a nap at work every day. Like some of you most days I just push through, but all in all I am so thankful that I can work and for my director. My efficiency is the same as before MG. I just can't move very fast or do physical activity. Thanks to everyone here, I would not have made it this last year without your care, concern and suggestions. Just knowing I am not alone in my struggles helps me when I am at my lowest. Hoping for a cure for us all......Love, Barbel

Since this was first posted, my health has worsened, but I must still provide the sole income for my children. Typically, I struggle with brain fog and the urge to sleep once I get out of bed. The day gets harder as it goes on, but I have to make myself do it. I have troubles with vision and core strength, but mostly it is the fatigue not attributable to MG that is plaguing me now. Once my day is done, I fly home as fast as I can where I sleep straight away. Recently I asked to fill out the paper work stating I have a serious illness so I cannot lose my job for using vacation time for doctor appts.

Bumping this up. You can find the link in our Links Member Group under "tips for daily life." That is an excellent discussion and has lots of day to day tips that members have submitted. Lots of good information in that Member Group, both for new and old members including this old member. Please feel free to post links. We have no way to keep things at the top of discussions, so we hide our best stuff there--actually we would like a better way to point it out--if you find one, please let us know! You can reach the Links Group by clicking on it at the bottom right hand corner of the main discussion page. b.