Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
After reading a previous comment on a post on here about the symptoms Doctors do not accept as being part of MG and the symptoms you all experience - It got me wondering what symptoms you all have that you feel is caused by MG that the Doctors don't .....maybe we might find a few in common!
I know I have muscle/joint pain when my symptoms are bad which is not typical of MG but I know some of you do have that also.
I was interested to read B feel GERD is one of hers and as someone who's never suffered with heartburn I have been having some heartburn lately especially first thing in the morning?
I also feel quite ill at times, generally weak and a little light headed especially when my breathing is slightly off
I go blue....lips, hands, feet - possibly breathing related?
Also, I have started to feel very wobbly by the end of the day and my legs literally feel like jelly and become shaky - is this typical MG? It's a new one for me over the past couple of weeks!
I look forward to hearing your "non-typical" symptoms and seeing if we do have any in common!
Hoping you're all feeling ok :)
Eve.x
I know I have muscle/joint pain when my symptoms are bad which is not typical of MG but I know some of you do have that also.
I was interested to read B feel GERD is one of hers and as someone who's never suffered with heartburn I have been having some heartburn lately especially first thing in the morning?
I also feel quite ill at times, generally weak and a little light headed especially when my breathing is slightly off
I go blue....lips, hands, feet - possibly breathing related?
Also, I have started to feel very wobbly by the end of the day and my legs literally feel like jelly and become shaky - is this typical MG? It's a new one for me over the past couple of weeks!
I look forward to hearing your "non-typical" symptoms and seeing if we do have any in common!
Hoping you're all feeling ok :)
Eve.x
With regards to the incontinence some of you have mantioned - I agree that some parts of that function are voluntary so surely it is possible to be affected by MG? To add to what Vieve said I have been to a Gynecologist because I have been experiencing pain during sex, thankfully nothing showed up and I have been trying to do some pelvic floor exercises which actually seems to help? So that has got me wondering if the muscles there aren't holding things in place as they should? I would say these muscles are like the lungs - they work automatically but can be controlled also so if the lungs can be affected why can these???
Thanks again everyone! Hope you all had a really good weekend :)x