Same here. Often extends to upper back and unless I rest, flat out, it inevitably effects my breathing.
Hope you find relief.
Larissa

Yep. Me too. I use a neck pillow to support my neck while resting.

Hi there, I dont get weak neck muscles but very weak arm muscles especially my right arm...Actually hurts to lift it sometimes..I try to get up and exercise them, that seems to help a bit but even at night I wake up with pains in especially that arm....Guess effects us all in different ways....

Yes! Just saying never do gym class curl-ups where they don't let you support your head, I couldn't lift it for very well for the rest of the night. Whenever I have a weak neck I either sit with my head leaned back to the wall or lay on my side. Supporting my neck with my arms also helps if I am doing something.

I do get weak neck muscles too. When this happens I like to go to my big black camel-backed chair which is built in a way that it cradles my head naturally. I usually need more mestnon at these times. Usually I am also having heavy eyelids at the same time and weak arms and legs.

When it is worse my head falls forward and I cannot raise it.
This is way past mestinon time. I need to be in the ER as it goes with everything being weak including breathing muscles. Marie

My neck is extremely weak. Even when the rest of me is ok, sitting upright too long makes my neck scream for rest.

Dee,
Resting my chin on one hand is definitely no help in typing and clonking the back of my head on the tub when I lean back because I've misjudged my neck strength is a sure sign of needing more treatment.

(For those undiagnosed, a "for example" is more helpful to the neuro than just saying something is weak and calluses where you habitually lean is physical evidence.) b.

My neck was so weak I had to wear a neck brace. Then a scarf helps be. Sometimes I still wear it when I drive so I can preserve strength.

Yes have to hold my head up sometimes, very hard if I am sitting at work and someone stands talking to me, if is hard for me to look up very long to talk to them. Also long car rides will make neck weak. My next rode trip I will bring along a neck pillow .
Annette

I realized that I was sleeping without enough neck support and figured that if I could really rest my neck muscles during sleep that they would probably be stronger for longer during the day. Found that sleeping on a not-too-thick travel neck pillow on top of my regular pillow works wonders. But put the travel pillow down like a horseshoe on top of the lower pillow with the ends pointing up to the top of the bed and nestle your head with the bottom curve of the pillow supporting your neck, not around your neck like you would wear it on a plane. Works for back sleeping (had to do that post thymectomy for a few weeks) and also for side sleepers like me. Keeps head from drooping down over my broad shoulders and also good for reducing pressure on facial muscles. This works for me and might be worth a try. I had to tweak the stuffing in my neck pillow to adjust the amount of support but it goes in the washer and dryer with the bed sheets and comes out fine and fresh.

Yes weak neck muscles started about 2 years after I was diagnosed. When my neck muscles get really weak I also have pain in my upper back and shoulders. I have had a few occasions when my head has fallen forward and my neck muscles are too weak to lift my head. The best remedy for me is to lie flat on my back with my head on a pillow long enough to rest the muscles so they work again. Usually an hour or two and then I can sit up as long as I have neck support like leaning my head against the back of the couch. I also bought a neck brace at Walgreens and use it on days when I am going to be extra busy. I hope you find what works for you.

Yes!!!! My head will start jerking when the muscles weaken...on a computer ALL DAY at work so it's very difficult on those days. The eyes always start drooping when the neck goes. Got a neck massager with heat to use in the evening and that brings relief since my muscles get very sore after a day of weakness. I'm sorry you are experiencing this and hope you find some relief!

Wow! Thanks for all of the tips. We may not have a cure for MG, but, each of you making adapting easier.

I have some form of neck pillow in use at almost all times when sitting or lying down. I have one on the bed, one in my recliner and one called "the bone" that is literally shaped like a bone for driving. It has the larger ends that really work well for support in the car. The others are the horseshoe type and I also flip them upside down and just rest my neck on the curved part.

Forgot to say that when my neck was really weak in the hospital and very painful, I had the nurses bring me one of the long disposable ice packs to rest my neck on and it really helped.