Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello everybody! its been a little while so id thought id give an update. ill try to keep it short and sweet.
Well im down to 35mg of prednisone and I am cutting again to 30 next week which is an incredible accomplishment for me! the past three tapers came and went without any increase in symptoms, and next week I will be on exactly half the dose I started on. the taper process is so long but I am so happy to say im on 30mg and not 60!!
Also some big news for me. I went back to school! I was being homeschooled from September to mid January and last week I had my first day back at my high school as a junior! it wiped me out for the whole weekend and my second day back I had to leave early because my legs were weak and I was having trouble walking around the school. it left me feeling a little defeated for a day or two but I finally snapped out of it when I realized that even though I didn't have as much energy as I thought I would, I still went to school! that's a HUGE step and you have to embrace every victory you can get, no matter how small. honestly, I think getting out of bed is something to be proud of if you have mg so im extremely grateful to be able to go to school, even if its just for a couple hours. Also its my birthday today! and going to school was the best birthday present I could imagine (besides remission haha!)
So that's all I have to share right now, hope everyone is doing well!
-Annie
Well im down to 35mg of prednisone and I am cutting again to 30 next week which is an incredible accomplishment for me! the past three tapers came and went without any increase in symptoms, and next week I will be on exactly half the dose I started on. the taper process is so long but I am so happy to say im on 30mg and not 60!!
Also some big news for me. I went back to school! I was being homeschooled from September to mid January and last week I had my first day back at my high school as a junior! it wiped me out for the whole weekend and my second day back I had to leave early because my legs were weak and I was having trouble walking around the school. it left me feeling a little defeated for a day or two but I finally snapped out of it when I realized that even though I didn't have as much energy as I thought I would, I still went to school! that's a HUGE step and you have to embrace every victory you can get, no matter how small. honestly, I think getting out of bed is something to be proud of if you have mg so im extremely grateful to be able to go to school, even if its just for a couple hours. Also its my birthday today! and going to school was the best birthday present I could imagine (besides remission haha!)
So that's all I have to share right now, hope everyone is doing well!
-Annie
Hooray on the pred' taper and going back to school,small steps remember some days just getting out of bed is enough.l'm sure lasting all day at school is not far off the horizon.
appreciate the reminder that attitude is so important. Your right 'small victories matter' or like a good quote I like puts it:
"Little By Little The Bird builds it's nest! "
Best wishes..and enjoy yr time back at school.
Dan
Congratulations on your steroid taper and getting some time in at school. I've tapered from 50 mg to 15 (over the course of a year) and am handling the taper quite well.
Have a super day and keep those spirits high!
Claire
You have a wonderful attitude dealing with mg. How did someone so young become so wise?
Judith
You are a Warrior Princess!
Glad to hear of the progress you are making!
- Ross
Glad to hear of your progress! Keep up the positive thoughts and you will go far :) Hope to see you at the MG Walk again this year!