I forgot - I'm also on Lisinopril 20mg in AM and 20mg in PM
THAT's what the neuro wanted to blame it on.
Maybe I should try cutting that by half starting this evening?
Drugs.com doesn't warn of any interactions that I can find for this combo. but certainly I never had this before starting Cellcept.
Thanks in advance.

If I understand you correctly you are on Predisone 30 mg daily? If so I'd bet that is causing the flushing etc. What you described is exactly what happens to me when I am on Predisone.

How are your blood sugar levels? Predisone can make them higher then normal too ... which can cause flushing too.

Do you take all 30 mg at one time?

Mary

Yep, I'd blame the steroids too. I have only recently started splitting up my prednisone dose to see if that helps with the flushing and sweating that comes with the steroids. I was taking all 25 mg when I get up around 6 am. Last week I started taking 5 mg or prednisone with each dose of mestinon which seems to be a much better thing for me. Instead of the steroids hitting me all at once it's a more gradual situation and I find that it is easier for me to control my body temperature that way. I had this issue well before I started the Cellcept so I'm sure that isn't it. Good luck to you and let us know what you figure out.
Angie

Here is a list of medicines that can cause flushing.

http://www.rightdiagnosis.com/symptoms/flushing/side-effects.htm

I have a condition that causes flushing with high blood pressure and was checked to make sure I do not have a pheochromocytoma. It is good to note if the flushing has high blood pressure combined with it and if it does alert your physician.

I also have orthostatic hypotension and rising from a chair will sometimes cause a lowering of pressure but without the flushing.
I can also get low BP just stiting while eating even a small amt.

It is good when you have BP changes to note when they occur. I just mention this since you mentioned the flushing and also mentioned getting up from a chair and that you checked your BP.
BP changes that fluctuate a lot can indicate other problems that need attention so I just wanted to mention that in case anyone has those types of problems that have not gotten attention.

I hope you figure out what is causing the flushing. For quite a while I was on niacinamide that causes flushing but I could temper that with an aspirin per dr's suggestion. Not sure if that would work for other types of flushing or no and of course you would need to know if a baby aspirin a day fits in with your medical condition. Sometimes the side effect is bothersome but can be worked around if needed. Hope you find what is causing this problem and a solution.

Good luck! Marie

Thank you all ! (Hi, Angie)
Okay - I'll tentatively blame the prednisone.
Thing is, I've been on 20mg / 40mg (every other morning) for 3 months.
Neuro was pleased with my lack of MG symptoms on last visit (5 days ago) and suggested I go to 20 / 30 for 4 weeks, then to 20 / 20 for 4 weeks - but carefuly watch for returning symptoms.
This RED thingie started about 4 weeks ago, always in the early afternoon - but has gotten worse with slight 'pressure headache' all 24 hours, over the last week. Again, BP was 136/83, which gives me some relief of anxiety.
I'll try splitting the prednisone dose to half AM, half PM and see if that helps.
Thanks again !! Everyone !!

I usually have issues with my face being red because of the prednisone, but when my plod pressure goes up my face gets red too. Like everything else with MG I have no idea what actually causes it. It's probably both.

I have been on steroids and around the clock mestinon for years. I get flushed like this once in a while....crazy red hot - people comment or gently tell me I have too much make up!! lol! This only happens once in a while for me..and doesn't seem to correlate with steroids. I take steroids every other day. Not sure! I have never had high blood pressure though...mine is always quite low and I have tested during these episodes and pressure doesn't correlate for me. Sorry -no help - but I wanted to share! Good luck
Nicole

I kid you not--I read this post before walking into the bathroom and turning on the light. Yowza! I was red as a roasted beet. Amazing, as I hadn't even felt flushed. I'm not on cellcept, but on 25 mg of prednisone right now. Maybe those steroids are the culprit?

Today was my 3rd day of splitting my prednisone into multiple doses. So far it is working and I've had very minimal flushing. I am back down to 20 mg of prednisone daily and I take 60 mg of mestinon every three hours. Basically, I take the prednisone in 5 mg doses along with each mestinon dose. I am pleased with the results so far. The only thing that I have noticed about doing it this way is that I don't have the same jolt of energy that I get when I take all 20 mg first thing in the morning. I am okay with that though because it usually makes me really shaky too. I had very little shaking today.

I'm interested to see if splitting your doses has the same benefit for you as well. Please let us know how that goes for you. Hugs and have a good Tuesday.
Angie

Seems to be a general trend here. Not everyone, but enough of you correlate the redness to the pred.
Thank you again!
The bizarreness is - onset of bright red face is
- around 2:00 pm
- when I get up from my desk chair to walk
- accompanied by a feeling like "high pressure air" in my head
- very dull, very weak overall headache (not focused)
- BP 138/85 which is quite good for me (normally 151/93-ish).
If I continue to walk around for 20-30 mins, the flushing gets better, but doesn't 'go away'.

So why like clockwork?
If it's my Mestinon-with-lunch, then why not after other meals?
why only upon standing after being seated for an hour or more?

I think this thread is dead now. Thank you all.

Just another thought, how is your blood sugar level? Predisone can make it go up...... oh,oh look up post pranial flushing. Ok... detective going to bed now :) I still say Predisone.

Thanks, Mary.
I will look up post pranial flushing, for sure.
The thing is, this symptom is new - only within the last 5 weeks, but I've been on 40mg alternating with 20mg pred since December.
2 weeks ago, neuro gave me permission to go to 30/20 for 4 weeks, then go to 20/20 for 4 weeks, then he wants to see me.
I bought one of those glucose meters/strips on line, and my fasting glucose is in the high 80's (86-ish), sometimes in the 90s in the morning. My a1C is '6', and the neuro says it's not time to worry yet.
Oh - it's postprandial and it may be related. I suppose I'll have to order more strips and track glucose when it happens. Although it seems to happen about 2 hours after eating. Hmmmmmm. You might be onto something there. Thanks. Pred leading to higher glucose after meals, getting worse the longer I'm on pred.....hmmmmmmm. I'll get more strips and track it - thanks !!

I started getting forehead flushing shortly after starting on Lisinopril. It would come on suddenly.

Sounds like you are on the right track here. If you would have said red feet and cellcept, we mighta had something there...

We may be onto something...
The postprandial thing got me to thinking what else is going on around that time of day (2-3 PM) and it was coffee (maybe). Caffeine is a vaso-constrictor, not vaso-dilator, so why the severe flushing? Well, I have been cheating by adding a tablespoon of hot cocoa mix (contains sugar) and maybe a girl scout cookie or two. So it could be related to blood glucose levels.
I ordered another box of glucose test strips and started
1. watching my glucose levels if and when I flush
2.avoiding eating or drinking anything that might cause a sudden glucose 'spike'.
So far, so good. Some flushing, but not as severe. Too soon to tell.
Thanks, everyone.